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Diet

A MyNarcolepsyTeam Member asked a question 💭
Virginia Beach, VA

Has anyone tried fermented foods to increase their oxerin? If so how much and when do you take it.

My son has narcolepsy 1 and our insurance has denied xywav. The company program can’t help is to pay for the drug. He is already on adhd and ssri

I am desperate to find other ways to decrease his symptoms.

August 9, 2023
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View reactions
A MyNarcolepsyTeam Member

I have never heard of using fermented food to increase oxerin. And that is assuming he still has some left. I eat low carb low sugar and that helps with day time sleepiness.

September 3, 2023
A MyNarcolepsyTeam Member

I've had good results with the generic xyrem. Have you tried that?

August 19, 2023

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