Connect with others who understand.

Sign up Log in
Resources
About MyNarcolepsyTeam
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Narcolepsy Symptoms Do You Have That You Didn’t Expect?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
September 22, 2023
View reactions
A MyNarcolepsyTeam Member

I knew fatigue was part of it, but extreme, dragging butt, barely conscious, crazy tired from breathing in/out was too tired for "normal" folks to understand.
Also, dreams that seem So real that I'd wake up angry at my wife for running around on me (which was not true). Both symptoms make it hard on a long-term marriage.

October 31, 2023
A MyNarcolepsyTeam Member

on the dropping of things. I'm not so sure if it is the cataplexy as I understand it ,it affects the whole body not just holding something in your hands. In my cataplexy I feet a surge going through my body and weakness ,my legs buckle if I am standing and I have gone all the way down. I fell out of a chair a few times. Now back to the dropping things which I do frequently,especially my cell phone while reading or writing texts. I believe that for me that I am having a micro nap.
Now- Andreaflores- I used to try to hide my Narcolepsy because of the embarrassment . One of the articles that I read on this site urged us to let people know that we have a brain disease called Narcolepsy ,let them know that it is a rare disease and that some of your symptoms may show up when talking,laughing, high emotional states and let them know about the other symptoms. You should have no embarrassment and you could make it light hearted by making a little fun of your self such as ..one time I laughed so hard I just lost it and fell out of my chair and as you are smiling say,I was so embarrassed! Now I think if I warn you in advance you will understand any of my weird behaviors. I am fine ,this is just how my brain reacts to these situations. I am taking medication to help with it but it doesn't work all of the time. I have had great response and many interested people have asked questions. Now you have become an ambassador for Narcolepsy. MOST of the population have no idea about it. Become an ambassador!

November 5, 2023
A MyNarcolepsyTeam Member

My cataplexy will come out of no where as well, I wish it would happen when something was funny but mine is usually when something makes me angry, or out of no where! Does anyone else get a small tremor?

October 4, 2023
A MyNarcolepsyTeam Member

The dropping of things has become an issue that seems to be happening more and more frequently. I had not associated it with my Narcolepsy however, now I am wondering 🤔.?.

October 1, 2023
A MyNarcolepsyTeam Member

Clumsiness. I drop things to the point that everything is plastic!

October 1, 2023

Related content

View All

What Narcolepsy Symptom Do You Have That You Didn't Expect?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA

Has Anyone Been Diagnosed With Fibromyalgia? If So, How Did Your Doctor Diagnose It When The Symptoms Are So Similar To Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Stafford, VA

Do You Feel Like Your Narcolepsy Gets Worse If You Do Too Much One Day?

A MyNarcolepsyTeam Member asked a question 💭
Atlanta, GA
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of Use, and our Health Data and Privacy policies.
Already a Member? Log in