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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'vebeen Baffled, Do I Have Epilepsy Or Narcolepsy? Issue: A Seizure When Near Waking From A Sleep Period. I Don't Have Them Very Often.

A MyNarcolepsyTeam Member asked a question 💭

My seizures usually follow experiencing a lack of rest, and high emotional and physical stress. I've taken Dilantin at first following my first seizure around 16 years in age. I've had several attempts at not taking medicine, then after having a seizure while sleeping go back on it. I'm currently back on the seizure control medicine Keppra and have not had one, but feel like going off it again as I believe consuming foreign substances like this reduces my natural state of being. I've had… read more

October 24, 2023
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A MyNarcolepsyTeam Member

I have both narcolepsy and epilepsy and I have seizures most often on waking (this is normal) and I find that both illnesses are worse if I am stressed or upset about something.I take long acting melatonin to sleep, Vyvanse 60mg to wake up (thank you husband), two epilepsy medications and Cymbalta for cataplexy. I take Keppra and Epileptin for the epilepsy.

November 4, 2023
A MyNarcolepsyTeam Member

Thanks for sharing your experience, I'm not alone. I too take Melatonin.

November 4, 2023
A MyNarcolepsyTeam Member

Does Keppra cause drowsiness during the day, or is it the disruptive sleep patterns from the condition. Its so confusing when the neurologist can't find any answers or reasons for symptoms.

October 28, 2023

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