Questions & Answers

I went to my doctor and explain to them that I thought I might have ADHD however, it is not being effectively treated because I was told that the medication for ADHD had the opposite effect in people who had narcolepsy and that’s why it worked. However, if you have ADHD and narcolepsy, does it work for one and not the other? How are you treated for both conditions?

I recently had my doctor say there is nothing else they can do medically for my narcolepsy; so I need to make lifestyle changes. One is exercising and I always feel to worn out or tired to do that. Honestly, my energy is used up doing household chores or other daily tasks that need done. The other recommended life changes I already do or am working on. But this is the big one that I have been told over and over to do and I struggle. :(

How many of you have had a sleep study after being diagnosed with narcolepsy? Narcolepsy and Sleep Apnea are very closely related and if you haven't had a sleep study to check for sleep apnea I definitely suggest it. Having my sleep apnea machine has greatly reduced my narcolepsy episodes. Maybe it can work for you? Hugs

Second paragraph explains my situation a bit more but my question is this - I see so many people on here and other sources and support groups that are on a regimen including multiple meds. I feel so guilty for even asking and it's dismissed, like all I am to them is an addict in their eyes. I don't want to doctor shop at all and I know it's trial and error finding one that gets it... is this a sign I may need a new provider? If not, how do I get the doctor to understand the actuality of it all… read more

Hope everyone is having a great weekend. I'm newly diagnosed type 2, and have started on 200mg of Nuvigil.
It works in the morning for me, but by the time early PM rolls around, I'm fighting sleep attacks.
I tried cutting it in half, and taking the 2nd half at noon, but I'm still absolutely crawling during my shift at work.
Has anyone had that problem? If I may ask, if you did, what are you on now?
Thanks in advance!!!!

I take 60 mg of addrrall XR in the mornings just to be able to do any sort of daily activities and some afternoons I have to take a 10 mg adderall tablet just to get through the rest of the day.

My doctor will appeal it, but how can the insurance company decide that I magically no longer need this medication???

I have consistently been losing weight for a few years without trying. I’ve lost around 30 lbs in 2-3 years. Doctors are disagreeing on the cause, one seems to think it’s my meds for narcolepsy, although I’ve only been on those six months. Curious to know if anyone lost/gained weight once diagnosed and beginning treatment?