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Adderall
My doctor won't give me adderall 30. MG. 1 tablet. 3. Times a day. I was taking it since 2017. Prescribed. By the doctor that diagnosed. Me. With narcolepsy. Then. They changed Dr's. On me. What do I do?
I am sorry but for three years my son has been a genie pig docs having him trying everything else but what worked for him - which caused him to lose of his log and where he was living along w all his… read more
Why Does It Seem The Meds They Have You On Work Sometimes Better Then Other Times?
My condition seems to be independently quirky as well. Also, I have to take a break from meds once in awhile & just sleep. Seems the meds cause me to use up whatever it is that my brain has in short… read more
Does Anyone Sleepwalk Since Diagnosed? I Have Started Doing That Some And Also Doing Things I Don't Remember Doing.
When I have an episode of dozing, as I am waking up, I start talking strange things. I really don't know how to explain it. So weird and strange!
While I have never experienced sleep walking, I do sleep talk! Apparently it is a part of narcolepsy. I also experience very vivid dreams which tend to blur with reality. This has led to me running… read more
Has Anyone Else Done The Orexin Testing/ Lumbar Puncture? I Got It Done Two Days Ago, It Was Very Strange.
Thank you. I have an upcoming appointment with my sleep doctor, so I'll be asking if that's something that could help her in regards to what treatment(s) she recommends. Hope your results are… read more
My Body Sometimes Let Me Know When I'm Bout To Suddenly Fall Asleep Can Anyway Else Relate
I am one of very few.a lot of times I can feel my brain going fuzzy. Listen to that over the years I have been able to focus on that feeling so I know when I can
How To Convince My School Teachers, Principal And Other Staff That My Condition Is In Fact Real And Making My Daily Life Harder.
My doctor wrote my school a not explaining my situation, and that I need small breaks during the day and to get excused from stuff like public speaking because that triggers my anxiety and panic attacks which also triggers my cataplexy, but the school doesn't care, they say I don't need any special accommodations, I feel so angry and hurt by this because it just feels like they are laughing in my face and calling me a liar for asking for help
The school has to follow those accommodations by law , they could get in big trouble by not following. I would remind them of this law .
Is Anyone Depressed?
A few days ago the psychiatrist told me that I have been depressed for about a year and that I have borderline personality disorder. The sleep specialist said it is normal for people with narcolepsy to become depressed. I sleep all the time, I can't get up in the morning, I feel sleepy while working. When I come home after work, I want to sleep immediately. The psychiatrist said my desire to sleep after work had something to do with depression. I began to confuse symptoms of narcolepsy and… read more
100% with you on that one.
Meds For Cateplexy?
Does anyone who has type 1 narcolepsy and takes meds, how do these help or no, to ease, or reduce your cateplexy spells? What are the meds you take?
I take sunosi for the sleepiness, but it does nothing to ease my cateplexy.
I would appreciate any input please, than you.
George W.
They help they help sometimes depending on the stress if it's not too high then you can function the next day.
Is There Anyone With Narcolepsy (Type 1 Or 2) Who Tries Managing Without Medication?
Is there anyone with narcolepsy (Type 1 or 2) who tries managing without medication? I'm still searching for something that effectively alleviates my symptoms without side effects that outweigh its benefits. I have tried ritali and modafini so far, but both of them lead to major mood swings and even personality changes that I was not willing to accept. Furthermore, they elevated my puls significantly which made me feel super edgy all the time. In the meantime I wouldn't mind staying off the meds… read more
I could live without me medication but I know for a fact I couldn’t keep a job, and I would sleep most of my day away on and off. I was diagnosed late in life and also go days without my meds when… read more
What Medication Do You Take For Your Narcolepsy?
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