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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
465 questions

Does Anyone Take Melatonin???

A MyNarcolepsyTeam Member asked a question 💭
Ravenna, MI

I can’t seem to take normal melatonin without being completely out of it the next day. But I have come across Pure zzz’s that claims to not give next day grogginess. Some morning are better than others on my ability to wake enough to be to work on time!

A MyNarcolepsyTeam Member

I will take 5mg and pass out in half an hour. I don’t use it regularly though, just when my bedtime starts creeping and I need to reset it.

March 19, 2023

Occasional Issues Passing Out After Meals?

A MyNarcolepsyTeam Member asked a question 💭
Soldiers Grove, WI

Has anybody else experienced issues passing out after eating? Or issues after eating a high-carb meal?

A MyNarcolepsyTeam Member

It works the only problem with that is that in the long run you could get stomach ulcers or Gastritis. Of course this takes alot of years of doing that to have consequences. I use to fast alot all day… read more

February 11, 2023

Anyone Have Issues With Prescriptions Fills?

A MyNarcolepsyTeam Member asked a question 💭
Cincinnati, OH

I take generic Adderall two forms 30 mg XR and 30mg IR and since October there has been major shortage in this country and I've been able to get 10 pills and 10 capsules out of the 30 my prescription is written for. Then I asked for a solution and doc wrote a script for Ritalin and that does nothing for me. I also live in Ohio and since I can't work am on medicaid and the politicians think the solution to illegal drug use is to require all medicaid recipients on controlled substances to be… read more

A MyNarcolepsyTeam Member

I have had an issue getting my Adderall for quite a few months. I live in Missouri, so luckily I can call around and get it filled anywhere they are available. I have had to call every month to find… read more

July 18, 2023

Is It Possible To Have Almost All Of The Narcolepsy Symptoms And Still Not Have Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Atlanta, GA
A MyNarcolepsyTeam Member

Yes!! My very first sleep study diagnosed me with narcolepsy. A required test by my employer 20 years later, he said that technically I didn't. I argued & questioned that for 10 years until I got a… read more

September 22, 2023

Who Experiences Sleep Paralysis And How Bad Is It And How Do You Cope With It?

A MyNarcolepsyTeam Member asked a question 💭
Collinsville, IL
A MyNarcolepsyTeam Member

I forgot the cope part… i just breath through my nose… count to 4, hold it count to 4, exhale count to 4 breath in count to 4… its called BOX BREATHING its also nearly instant relief from anxiety… read more

January 25

Will I Always Have EDS?

A MyNarcolepsyTeam Member asked a question 💭
Pineville, LA

I’m sleeping longer at night on xywav but wake up several times still. Will I ever get enough quality sleep to not doze when sitting for a bit?

A MyNarcolepsyTeam Member

Very rare

January 18

What Experiences Do You Guys Have With Xyrem... Does It Work?

A MyNarcolepsyTeam Member asked a question 💭
Lenoir, NC

My doctor is going to start me on Skyrem (Xyrem with less sodium) and I was wondering what people's experiences are with it. Does it work well? Does it cause any negative side effects? Do you still need to take other meds to fight day time sleepiness?

A MyNarcolepsyTeam Member

I take Xyrem and it has really helped me get the life I never thought I could have. Just be careful with it and feel free to call the distributors for any questions! They're super nice!

November 19, 2022

Does Anybody Find That Venlafaxine - Which I Use For Cataplexy- Makes You Sleepy? I Find That Within The Hour I Have To Nap A Half Hour.

A MyNarcolepsyTeam Member asked a question 💭
Naples, FL
A MyNarcolepsyTeam Member

No.Supplements for me!

September 28, 2022

What Narcolepsy Meds Work For You?

A MyNarcolepsyTeam Member asked a question 💭
Quakertown, PA

I've tried almost all of the narcolepsy meds and nothing worked. I'm on Adderall 20mg 3 times a day... which barely work all day, and I take Trazodone 150mg at night (which work great) to sleep.

A MyNarcolepsyTeam Member

Wakix isn't available in my country yet, Circadian (a type of long release melatonin) helps me sleep (have done the trazodone route and it also worked), I take Cymbalta for cataplexy and I take Vyvansread more

November 26, 2023

I Sometime Fall To Sleep While Am Driving.But I Put It Off As I Am A Bad Driver.Did Anyone Do This Before?

A MyNarcolepsyTeam Member asked a question 💭
Louisiana, MO
A MyNarcolepsyTeam Member

Provigil make me like I am having a heart attack! My blood pressure goes up really high!

March 29, 2022
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