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What Analogy Would You Use To Help Someone Understand What It’s Like To Live With Narcolepsy?
1. You know how you get your 7-8 hours of sleep from 10:00pm-6:00am? Since my brain skips the normal sleep stages, I get my 7-8 hours of sleep over a 24 hour period in fractured increments, which… read more
What Aspects Of Narcolepsy Are You Grateful For And Worried About Lately?
I love my vivid dreams but i hate sleeping my life away.
How Do You Manage Your Narcolepsy At Work?
I'm retired now, for 2.5 years (yay me!!) but I would nap on my lunch break and eat lunch at my desk while working. Sometimes catch a little microscope on a 15 minute break. I also had FMLA with time… read more
What Narcolepsy Symptoms Do You Have That You Didn’t Expect?
I have the same problem at night, however during the awake time, I can go all day without a bathroom break
What Is Your Morning Routine?
I've not used Frankincense before to help energize me, but I recently started using it at night, along with lavender oil, in my aromatizer to help me fall asleep and reduce my nighttime narcolepsy… read more
How Do You Thank Your Family And Friends For Their Support?
My son and his new wife are very supportive of me! But they don’t live close by me now so try not to bother them too much!
What Is Your Favorite Hobby?
Lucia, I listened to Chain of Fools, and you guys sound great! I'll have to listen to the others. What a nice way to spend time with friends doing something you enjoy, and others love to sit, relax… read more
What Three Items Are Most Indispensable To You, And Why?
my wife, my music, my eyesight
How Do You Know You're Still Too Tired?
Hello everyone
After reading so many stories, it seems no one ever really feels awake even with medication. Medication helps, but it never seems like enough
I am frustrated, probably like many of you, with my medication. I know it's better. I am not having sleep attacks as often I used to. I realized that early on in taking the meds. I was still falling asleep around 11:30 though so I started taking a second dose at 12 (so I could have another 2-3 hours) and I just feel so frustrated. I'm out… read more
No you are not exaggerating. I take modanifil. If I take 200 mg I stay awake all day but in a fog and stay up til 330 in morning. If I take 1100 mg it makes me go back to sleep go figure. I want to… read more
I Get Stuck In My Sleep. It Scares Me!
I get stuck in my sleep. I can open my eyes and I can see around the room but it's like I'm being held down and my breath is being taken from me! I try to move my body, sometimes I think I am! when my friend stayed over I was trying to kick her cuz I couldn't wake up even though my eyes were open and I could see the room I was being held down and my brother was being taken it was hard to breathe the hardest part to say, I'm going to see right now. sometimes it feels like I'm being held down… read more
I have had that its so scary I just can't move im also awake well I'm sure i am
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