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Anyone Know What The Social Security Disability People Think About Narcolepsy.
The judge that I had actually had "The Inspire implant she has cured her narcolepsy." HOW can she have used that!! And that's just one of the multiple incorrect things listed. It's not even possible… read more
Could Someone Suggest A Provider In The Northern NJ Area Who Treats Narcolepsy?
I suffered a TBI in 2013 and seemed to have memory issues, and mild cognitive impairment since. I had been a Microbiologist for 25+ years in a hospital. Most will say I don’t appear to be disabled and quite intelligent. But I can’t even do math now and I have multiple “to do lists” I write, re-write daily, I forget medications and sometimes to eat. I seem to struggle with sense of time. I can be on my phone texting for hours and wonder why my hands hurt, I think I’ve been on the phone a much… read more
I’m going through the same situation with providers and a Comoros diagnosis with being beyond the scope of the spectrum as the “worst case seen in narcolepsy with all cataplexy.” In Indianapolis area… read more
Narcolepsy. And Ptsd. Does Anybody Have This Combination?
Yes I have both…..
Does Anyone Ever Spontaneously Come Out Of This Ever? I’m Just Looking For Any Hope Whatsoever.
Yes, there are cases that have totally recovered. Very uncommon but it does happen.
I Get Extremely Tired With Narcolepsy After Hard-core Swimming Class As Soon As I Eat Anything After Workout
I run, and with longer runs, I bring glucose tablets or maple syrup. I put a Gatorade like mixture in the water in my camelbak. (Dextrose plus a little salt) . Helps level it out.
Which Meds, Prescription Or Non, Have Worked The Best To Help Lessen The Sleepiness During The Day For You? Same Question, But Cateplexy?
GeorgeW.
Has Anyone Tried The Sodium Oxybate For Narcolepsy?
I struggle heavily with sleeping anxiety at night and my doctor is trying to get me it. Wondering if anyone can speak to their experience so I can gage an idea! Thanks!
I've been on lumryz about a month. Totally knocks me out and I get refreshing sleep. It's extended release oxybate so you only take one dose at night
Unfortunately my EDS and sleep attacks are too… read more
Doc Prescribed Wakix. Anyone Out There Taking It? Has It Helped At All? Have You Had Any Bad Side Effects? Thanks For Any Feedback.
My Doc Just Prescribed Wakix For Me. Is Anyone Else Taking It? Just Would Like Some Feedback On How You Feel About This Drug?
I've been taking it for 19 months. It does something but not enough by itself. I also take Methylphenidate to stay awake during the day.
I’m Already Laughing Asking This… Does Anyone Experience “Exploding Head Syndrome”? Its 100% Legit Medical Term.
Its like a shotgun blast, or door slam right about the time “I check out”
It used to scare me, but now not much even makes me flinch (except spiders).. I can still out scream a girl when meeting an unexpected spider. 😔
Now that I'm thinking about it, I would say the sound I hear would be a very loud "slam".
Interesting question 🤔...?...
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