Questions & Answers

Am almost 42, live in Huntington WV and am womdering if there is anyone else with narcolepsy looking for someone to talk to for sypport or just a friend to listen IN PERSON. Preferably with small child also. Single mom seeking same for emotional relief

A doctor advised me decades ago to keep a record of my meds (amt, dosage, time) and past medical history. To this I added all my past meds that I was prescribed for narcolepsy but didn't work. The meds we get for our narcolepsy often have wicked side effects and we don't want to buy the same real estate twice. Every time you switch doctors (keep a record of the doctors' names you have seen also ) you have a record of what's already been tried. I can't stress this enough that this is VITAL and… read more

It was shown years after the h1n1 flu but 1st thought to develop narcolepsy from the vaccine in the UK that people who caught this flu did develop narcolepsy from the virus itself and there is a connection between it and having mononucleosis at some point.

Is there any medication, beside minipress, that helps with nightmares? The minipress dropped my blood pressure too low (which it is intended to do being a high blood pressure med) so I couldn't use it. It did help while I took it.

Im burned out on taking all these meds im looking for place to learn to eat better get in shape

I am on methadone replacement therapy for narcotic pain pill addiction. What can I do to have a somewhat normal life. I fall asleep everywhere it doesn’t matter what I doing. Driving talking to someone using the restroom taking a bath. Etc
Please if someone can help me find out what I can do, I would be so thankful. I have no life I just exist.

I feel like everything inside me is shaking real fast. and I have audio and visual hallucinations, when I realize that I'm having one of these attacks, the hallucination stops, and I am aware of what is happening, and try to wake up. But I can't break out of it, and I get scared, thinking I'm going to die! Then I think, If I could just open my eyes, move some part of my body, a finger, even, or yell out for help, that It would stop but I cannot move and everything in my body feels like I'm… read more

My names cary.ive taken nuvigal for years .they have mixed in sunosi &ritilan before. I can't get rid of my sleeping head. Anybody have that problem? Advice?

With for the last 5 years I've had all incidents of falling asleep without being wake up. Mostly happens when I'm very stressed out or very angry. I have found myself falling sleep at restaurants ,at my job and at home where nobody can get me to wake up or respond. Is there a thing called stress related narcolepsy? Can some help. I will be going to specialist when I got insurance again. Thanks for your time.