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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Medication Are You Taking To Help You Sleep At Night?

By A MyNarcolepsyTeam Member 31 answers

Which Narcolepsy Symptom Surprised You The Most?

By A MyNarcolepsyTeam Member 24 answers

How Do Beverages With Caffeine Affect Your Narcolepsy?

By A MyNarcolepsyTeam Member 38 answers

How Do You Cope With Seasonal Changes And Narcolepsy?

By A MyNarcolepsyTeam Member 13 answers
465 questions

Anyone Find Anything To Help Other Than Prescription Medication?

A MyNarcolepsyTeam Member asked a question 💭
Wilmington, OH
A MyNarcolepsyTeam Member

Definitely scheduling naps like JCTheNodsy said. I have other issues that require me to also be careful about food intake (amount and time) otherwise I get insanely tired so maybe check if you get… read more

July 14

Does Anyone On Here Have An At Home Job? It's Been Hard Driving To Work And Staying Awake. Started Wakix So I'm Hoping That Will Help Soon

A MyNarcolepsyTeam Member asked a question 💭
Rossville, GA

I have narcolepsy with cataplexy and it's hard to do certain jobs. I have to keep busy constantly

A MyNarcolepsyTeam Member

I know the vibes all too well

June 27

I Just Want To Find Hope. How Does Somebody Like Me Ever Find A Relationship? I Fear I Will Never Be Worthy Of Having A Good Relationship

A MyNarcolepsyTeam Member asked a question 💭
Kcmo
A MyNarcolepsyTeam Member

Everyone I have ever met with narcolepsy is married. At 79 I have had 2 long marriages myself. Don’t give up. Sometimes it just takes a long time to meet the right person.

August 31

Has Anyone Been Diagnosed With Fibromyalgia? If So, How Did Your Doctor Diagnose It When The Symptoms Are So Similar To Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Stafford, VA

Also, what meds do you take for fibromyalgia? Do they work?

A MyNarcolepsyTeam Member

Yes but not able to take nerotin or gabapentin so help is off. Never heard of duloxetine

May 31

Has Anyone Tried Something Called LUV? They Are Liquid Drops Sold Online. Also, Does Anyone Else Have ADHD Symptoms? I Have All! I'm 59

A MyNarcolepsyTeam Member asked a question 💭
Oxford, AL
A MyNarcolepsyTeam Member

I have also seen these but have not tried them I would also like to know if anyone has had good results with these

April 4

Ever Heard Of Reading-induced Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Cape Town, ZA

I pretty much can’t read more than 2-3 pages of a novel without dozing off. Makes life quite weird at work when I have to read film scripts. Watching TV/ films is also pretty bad. Don’t know when I watched a whole movie/ even in the cinema.

What is helpful is when I want to nap… all I need to do is read for a few minutes.

A MyNarcolepsyTeam Member

Sounds like we're the same, although I'm never up for that long. I have no problem falling asleep at night if I can read a bit, but I tend to wake up a lot in the night. When I wake up in the middle… read more

March 14

Is There A Wearable That Tracks Sleep That Can Set An Alarm And Wake You At The Optimal Time Of The Sleep Cycle?

A MyNarcolepsyTeam Member asked a question 💭
Mullica Hill, NJ

I have narcolepsy with cataplexy. I sleep like a baby, I wake up every 2 hours crying!😊

A MyNarcolepsyTeam Member

Most smart watches can be done that way now

March 25

Has Lumryz Been Approved Yet And Is Anyone Using It? This Is The One Dose Xyrem.

A MyNarcolepsyTeam Member asked a question 💭
Bluffton, SC
A MyNarcolepsyTeam Member

i just take 2mg bars of xanax up to 4 times a day but usually two at night and it helps

February 26

Those Of You Who Have Cateplexy. Have You Taken Venlafaxine And Has It Helped? What Side Effects Have You Expereienced? GeorgeW

A MyNarcolepsyTeam Member asked a question 💭
Boise, ID
A MyNarcolepsyTeam Member

I am lucky enough to only experience cataplexy a handful times a year. So I don't try to medicate for it

February 29

I Get Sleepy During Day Time And Night Time

A MyNarcolepsyTeam Member asked a question 💭

Have had a wreck driving falling asleep

A MyNarcolepsyTeam Member

I have started to fall asleep plenty of times and don't know how I got from point a to point b. It's scary. Be careful. If possible try to take a short nap before going on a trip.

February 19
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