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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Who Experience Falling Asleep At Any Given Time Or Place? I've Fallen Asleep At Work Sitting Down On A Crate, Passenger Seat Riding& Etc

By A MyNarcolepsyTeam Member 18 answers

What Tips Would You Share To Help With Seasonal Allergies?

By A MyNarcolepsyTeam Member 12 answers

How Do You Cope With Seasonal Changes And Narcolepsy?

By A MyNarcolepsyTeam Member 13 answers

What Narcolepsy Symptoms Keep You Up At Night?

By A MyNarcolepsyTeam Member 18 answers
465 questions

When's The Best Time To Exercise For Someone With Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Rochester, MN
A MyNarcolepsyTeam Member

All the time except a few hrs brfore bedtime

February 17

Have Any Studies Been Done That Equates Narcolepsy With Being Exposed To Ingesting Toxic Chemicals?

A MyNarcolepsyTeam Member asked a question 💭
Alexandria, VA
A MyNarcolepsyTeam Member

I have no read anything about toxic chemical ingestion. Only autoimmune syndrome.

April 2

What Kind Of Natural Remedies Are Good For Type 2 Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

I agree about smaller meals, especially if you have any difficulty with acid reflux . If you do have acid reflux or sinus drainage you can also raise the head of your bed by 5 or so inches. I also… read more

February 8

My Polysomnogram And Mslt Both Showed A Complete Lack Of Delta Wave Sleep... Any Others Here With Same Test Results?

A MyNarcolepsyTeam Member asked a question 💭
Chicago, IL
A MyNarcolepsyTeam Member

Four minutes of N3? You're LUCKY! My result was literally zero seconds. ;)

February 13 (edited)

What Have Those Of You Who Have Cateplexia Taken As Far As Meds, Both Prescription And Non, To Help With Cateplexia Episodes? George W.

A MyNarcolepsyTeam Member asked a question 💭
Boise, ID
A MyNarcolepsyTeam Member

Thank you for the reply Lucia. May I ask what mg you take on each of these meds, sodium oxybate & venlafaxine, also do you take them in the morning, before bed or what times and once or twice a day?

read more

January 27

My Doctor Prescribed Wakix For Me Because Of My Narcolepsy And Cataplexy. My Insurance Company Is Covering It, Thank Heaven.

A MyNarcolepsyTeam Member asked a question 💭

Is anyone out there taking Wakix? Has it helped you? My concern are side effects, etc. Let me know what you think of it. Thanks!😴

A MyNarcolepsyTeam Member

It's all poison

September 6

How Long Can The Process Take To Get Started On Xywav?

A MyNarcolepsyTeam Member asked a question 💭
Owensville, MO
A MyNarcolepsyTeam Member

The doctor takes care of the enrollment with the pharmacy I think the biggest part about waiting is getting the insurance authorization to cover it. Once approved I think a rep and a nurse or… read more

January 22

Anyone Ever Do The {I Cant Stay Awake, But I Cant Go To Sleep Thing…} ?

A MyNarcolepsyTeam Member asked a question 💭
Texas (for now

Sometimes I think I'm a special kind of crazy. I totally don’t understand how I make it through some days/nights.

Today was one of those weird days I literally fought all day to stay awake and that’s basically all i accomplished.

Now its 2:19am and I’m trying to not get upset because I get exhausted from fighting to stay awake and struggling with 2 years into trying to get used to legs not working but also spasming and cramping.

My head starts thinking about the mass of things i need… read more

A MyNarcolepsyTeam Member

Try meditation! I use an app called Insight Timer and it has a ton of free guided meditations and calming music. The guided ones really help me take my mind off the merry-go-round! Let me know how it… read more

January 7

Is There Any Way To Remedy A Hypocretin Deficiency Naturally?

A MyNarcolepsyTeam Member asked a question 💭
Tyler, TX
A MyNarcolepsyTeam Member

I have read that there are certain foods that naturally help the hypocretin levels but I’m not sure how true it is . Look it up on google they will list some foods on there.

December 12, 2023

Wakix And Cateplexia

A MyNarcolepsyTeam Member asked a question 💭
Boise, ID

If any of you have cataplexia and are taking Wafix?
How does it work, does it reduce, reduce or stop your cateplexia?

George W.

A MyNarcolepsyTeam Member

Thank you Elizabete. Are you doiing anything different to try and reduce your cataplexy, meds, supplements, oils, CBD?

George W.

January 9
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