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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Who Experience Falling Asleep At Any Given Time Or Place? I've Fallen Asleep At Work Sitting Down On A Crate, Passenger Seat Riding& Etc

By A MyNarcolepsyTeam Member 18 answers

What Medication Are You Taking To Help You Sleep At Night?

By A MyNarcolepsyTeam Member 31 answers

Which Narcolepsy Symptom Surprised You The Most?

By A MyNarcolepsyTeam Member 27 answers

What Are Your Top Tips For Dealing With Narcolepsy In The Heat?

By A MyNarcolepsyTeam Member 17 answers
496 questions

Does Narcolepsy And Lupus Go Hand In Hand

A MyNarcolepsyTeam Member asked a question 💭
Houston, TX

I have both and immune disorders along with allergies and intolerance to foods.

A MyNarcolepsyTeam Member

They are both autoimmune disorders, and usually if there's 1 there's more.

August 20

Hello! I Am Moving From The US To Spain For School. Does Anyone Have Experience In Obtaining Medication In Europe, Specifically Modafanil?

A MyNarcolepsyTeam Member asked a question 💭
Tampa, FL

I have diagnosed Narcolepsy, with 200mg Modafanil 2x a day.

A MyNarcolepsyTeam Member

Is it helping you? My sleep doctor recently started me on 250 MG Armidafinil and 30 mg of dextroamphetamine.
It helps, but what has worked best for me is Armo along with 50 MG Vyvanse.

July 15

Just Read A Little About Something Called WAKIX. Anyone Out There Had Any Experience With That ?

A MyNarcolepsyTeam Member asked a question 💭
Bangor, ME

Cataplexy knocked me down hard yesterday. I was at a public event so it was
quite embarassing and depressing.

A MyNarcolepsyTeam Member

Yes I hate this so bad , it effects me alot worse when it's really hot out.

May 22

Using Ozempic For Weight Loss, Help The Narcolepsy To ,,

A MyNarcolepsyTeam Member asked a question 💭
Connecticut, CT
A MyNarcolepsyTeam Member

How?

5 days ago

Everyone Have A Great Week 😁

A MyNarcolepsyTeam Member asked a question 💭
Little Rock, AR
A MyNarcolepsyTeam Member

Thanks you too

April 1

5 Years Old With Narcolepsy Type 1

A MyNarcolepsyTeam Member asked a question 💭
Saudi arabia

Hello

Does anyone have a child who was diagnosed when they were really young? Wondering abt their medication and overall experience

A MyNarcolepsyTeam Member

I was diagnosed in the early 80s I was 11. I started on Adderall then.

March 25

Can A Person Take Narcolepsy Med With Bupenorphine?just Curious.

A MyNarcolepsyTeam Member asked a question 💭
Northern cali
A MyNarcolepsyTeam Member

Yes

March 24

Has Anyone Ever Taken Wakix While Pregnant?

A MyNarcolepsyTeam Member asked a question 💭
Palm Bay, FL

I spoke with my sleep specialist, my doctor, the manufacturer, and panther x pharmacy. They did not have any information if the medication is safe to take when pregnant. They said there were animal and few clinical trials but I don't know. My sleep specialist told me to ask my doctor. My doctor told me to ask the manufacturer and it seems like I am getting the runaround. The pharmacy told me that there are few clinical trials with pregnant women and medications with lots of medication not just wread more

A MyNarcolepsyTeam Member

I would definitely read up on that

March 16

Can You Recieve Ssi Due To Narcolepsy With Cataplexy

A MyNarcolepsyTeam Member asked a question 💭
Seattle, WA

i suffer from narcolepsy and cataplexy and severe ADHD,along with social and general anxiety,panic disorder and depression

A MyNarcolepsyTeam Member

oh yea i take 2mg of alprazolam 4x day,was taking 60mg of ritalin ir plus foclain40mg once daily,now i take 30mg of adderall instant release twice a day,but like methylphenidate better

February 26

Lumryz - The New Med On The Market Taken Only Once At Bedtime. Anyone Here Using It And How Is It ?

A MyNarcolepsyTeam Member asked a question 💭
Babylon, NY
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