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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

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496 questions

Looking For Neurologist That Specializes In Sleep Disorders.

A MyNarcolepsyTeam Member asked a question 💭
Pembroke Pines, FL

I live in Pembroke Pines, Florida and am looking for a new MD to treat my Narcolepsy. There are lots of them but very few treat sleep disorders. Unfortunately Ritalin and Adderall are not options for me because I have some heart Issues. I tried low doses of both and had to stop because of it.
All info is appreciated. Thanks!

A MyNarcolepsyTeam Member

Hey there, I worked at the Univ of Miami School of Med. a long time ago and while I was there, I saw a neurologist specializing in sleep disorders (I have Type 1 Narcolepsy). There are several sleep… read more

August 29, 2021

Does Anyone Know How To Edit The Town And State You Are From?

A MyNarcolepsyTeam Member asked a question 💭
lilbrez79@yahoo.com

My information says I am from Hermon, NY but I am from Hermon, Maine and can not find out how to change it. Any help would greatly be appreciated!

A MyNarcolepsyTeam Member

Lori go to your profile and hit edit then save. I cant fix mine eather, or hit on your picture - hit on city , state - hit filter - change it - scroll down hit show. It changes it but then goes back… read more

August 26, 2020 (edited)

New User Question 1- Is There An App For This 2- Multi Group Access

A MyNarcolepsyTeam Member asked a question 💭
Smithtown, NY

Many of us with narcolepsy do not just deal with this as our disease manifestation of it and additions as we know include ADHD anxiety, depression, and for me some of those but also severe chronic fatigue. I guess my question would be is within this network or app or their sub groups for people that have these things or do you have to join a whole Nother group and if so, how because if we have learned anything when you have narcolepsy or chronic fatigue having too much information is more… read more

Is Anyone Taking Adderall Salt Combo For Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
San Antonio, TX

Is There Anyone In The Triangle, NC Area Able To Recommend A Neurologist Who Specializes In Sleep Disorders?

A MyNarcolepsyTeam Member asked a question 💭
Raleigh, NC

My current facility is Raleigh Neurolgy in Cary. I'd been seeing Dr. Perkins since diagnosed in 2008. He left the facility in Apr. 2024. They reassigned me to another physician, however my May appointment was canceled. Rescheduled to July. Canceled. Rescheduled to Oct. Canceled. Reschedule date is now Apr. 2025. At this point it's been a full year since I have been seen, and I'm SOOOOOOOOO over this madness. Referrals are appreciated.

Has Anyone Found Exercise To Be Helpful In Either Managing EDS Or Improving Nighttime Sleep Quality? Please Share Type & Timing Of Workouts.

A MyNarcolepsyTeam Member asked a question 💭
Missouri Valley, IA

Hi I Have Type 1 Since Birth And I Am 65. Is There A Non-Apple Accurate Sleep Device I Can Wear 24/7? I Cannot Stand Iphone/iwatch Anymore.

A MyNarcolepsyTeam Member asked a question 💭
Wexford, PA

Any Providers On Here Who Treat The Worst “extremely Severe” Cases Of N1 With Neurology, Sleep Disorders, OSA (Comorbid Diagnosis) Specialty

A MyNarcolepsyTeam Member asked a question 💭
Greenwood, IN

I experience all N1 & cataplexy symptoms & have OSA.

Has TMS Helped Anybody?

A MyNarcolepsyTeam Member asked a question 💭
Kcmo

Help With Finding Doctor/neurologist ??team In My Area…(Los Angeles Suburbs) For Daughter 19 In Bad Shape? Where Do I Start???

A MyNarcolepsyTeam Member asked a question 💭
Los Angeles, CA

L.A area
Need Sleep Study
Narcolepsy type 1 ( Dr. refer)
Daily attacks

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