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Best Days
I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more
What Narcolepsy Symptoms Keep You Up At Night?
I can't fall asleep until I eat a gummy
Who Or What Source Of Information On Narcolepsy Has Been Most Helpful To You?
My teammates on this site are very helpful and useful to me❤️
What Sleep Study Is The Best To Diagnose Narcolepsy
I was wondering if anyone can help me with a few questions I have. I had a sleep study done several years ago and my doctor at that time said I had narcolepsy. I can't remember which sleep study that was. I have been taking provigil for several years and it worked great for a long time. Now that it doesn't my primary care physician wants me to have another sleep study done because he doesn't know that much about narcolepsy so he ordered the sleep study for sleep apnea. Since he won't take the… read more
Hello, Kathy-
Just noticed your question was in 2021
You might seek out a psychiatrist as most seem to be very educated on narcolepsy as part of their medical training and all the potential meds for… read more
What Music Are You Listening To Right Now? Drop A Link.
I forgot to mention Randy Travis. His rendition of "It's Just A Matter of Time" is the spark that got me interested in Country music. That is not a country song. Just so happens he was the star at We… read more
What Creative Tips Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
I choose friends that care and understand how difficult life can be for narcoleptics.
Has Anyone Else Read That Narcolepsy Is Commonly Treated With Stimulants? Ex. Adderall
I have been struggling with my sleep and staying awake for a long time. My boyfriend of a year (and some change) has tried to help by seeing if taking one of his Adderall pills would help me stay awake. I've found it puts me to sleep right the same as my Xanax does. Another friend suggested I try Vyvanse. I have heard Vyvanse is different but not sure in what ways. I tried a tiny amount on a day where I was struggling to stay consistently awake, and it worked. No side effects, just normal… read more
How Do I Get Drs To Take Me Seriously?
I've been to sleep drs., resulting in a Cpap. Neurologists, etc. They won't even discuss narcolepsy because I don't "fall down when I laugh"!! My cousin had narcolepsy (now deceased) so I know how difficult it is to get a diagnosis. What should I do next?! I've been miserable with this since high school (I'm now 70!)
Hello, Nancy-
If you have narcolepsy without cataplexy (falling down when you laugh, are surprised or startled) you might very well have narcolepsy Type2
Type 1 narcoleptics typically have cataplexy… read more
What Are Your Top Tips For Dealing With Narcolepsy In The Heat?
Be sure to take periodic naps throughout the day even when you don’t feel like it
What’s Your Top Survival Tip For Managing Narcolepsy In The Summer Heat?
If I'm tired a quick nap before anything! Otherwise, it's a waste of my time & yours... when I was younger ( 30's - 40's ) I could wake up after 15 mins (on my meds of course) feeling like I had 8… read more
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