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How Do You Cope With Seasonal Changes And Narcolepsy?
I know winter is for rest. I still go outside, get sun, and short exercise no matter how cold. Cook alot and make up homemade freezer meals. Spring is full of gardens and remodeling. Summer is slower… read more
Do You Feel Like Your Narcolepsy Gets Worse If You Do Too Much One Day?
I know with chronic fatigue syndrome, you can push yourself too hard and then have consequences of that in the following days. Do you feel the same thing with narcolepsy?
If I feel good, then I can keep doing whatever I’d like.
But if I push back against the sleep attack, I pay for it immediately. I get super grouchy, incredibly Sleepy progressing to confusion. I’m… read more
What Advice Do You Have For Someone Newly Diagnosed With Narcolepsy?
Let everyone in your immediate circle know that you have narcolepsy and have a safety plan in place for cataplexy.
When Adderall Wears Off.
What Do You Take For Treatment?
Over the years I've avoided the doctors after being diagnosed to avoid loosing my license. So I mega dose caffeine. So that is my medication for now. It's tricky and one day will probably kill me. It has resulted in high blood pressure and crazy heart problems, but it kinda works. What's yours and does it work?
My Medication Doesn't Always Work
I take 40 MG of Adderall XR twice a day and have been for a long time. Now my morning dose isn't always effective sometimes for 2-3 hours ornot at all. The 2nd dose still does ok. I can't continue to live like this and my sleep Dr didn't pay any attention and just made me an appt for next year!! I'm so frustrated.
What Tips Would You Share To Help With Seasonal Allergies?
My tip: always start your regimen well before the season begins. This strategy has never failed me ❤️
What's One Natural Remedy That's Helped In Managing Your Narcolepsy?
what is the natural alternative you use?
I'd Like To Hear From Those Of You Who Go Through Sleep Paralysis
If you suffer from sleep paralysis and it started before the age of smart phones and google, how did you react? How long did you go without knowing what was happening?
I agree completely. I wonder if narcoleptics are more in tune or more susceptible to spiritual attacks. I have felt and seen the evil and it’s the praying and calling out to God that fights it off and… read more
What Are New Life Hacks You've Learned To Better Manage Your Life With Narcolepsy?
I could not be more agreed. On the top of that it will depend of the season, the days, the time there are so many variants which could interfered on a daily bases, and we have to take them in… read more
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