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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Narcolepsy Symptoms Do You Have That You Didn’t Expect?

By A MyNarcolepsyTeam Member 28 answers

Which Narcolepsy Symptom Surprised You The Most?

By A MyNarcolepsyTeam Member 24 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Narcolepsy?

By A MyNarcolepsyTeam Member 13 answers

What's A Common Misconception About Narcolepsy?

By A MyNarcolepsyTeam Member 24 answers
464 questions

Anafranil

A MyNarcolepsyTeam Member asked a question 💭
Alger, MI

I have been taking adderal for a good 15 years. The highest does and is not helping. I took adderal originally for adhd. But it doesn’t seem to work anymore. Do you have any suggestions?

A MyNarcolepsyTeam Member

Provigil to stay awake during daytime, but doesn't help with concentration and focus.

May 18, 2023

Is It Possible To Have Cataplexy Without Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
West Covina, CA

I can't seem to find any answers on whether or not cataplexy can occur without having narcolepsy what causes the cataplexy?

A MyNarcolepsyTeam Member

the answer is yes. You can have even narcolepsy without cataplexy, and as it has been my case, developped cataplexy sometimes partial or full ( as per myself) years after the first effects or bouts of… read more

August 6, 2023

How Do You Manage Your Narcolepsy At Work?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

I am disabled for the past 20 years! But when I worked, I worked night shifts! Took me awhile to learn how to sleep at night!

September 27, 2023

Cataplexy

A MyNarcolepsyTeam Member asked a question 💭
Slc, UT

Is there anyone who has experienced cataplexy on a daily/regular basis? & If so what exactly do you experience during an attack? Was anyone misdiagnosed with Pots or epilepsy?

A MyNarcolepsyTeam Member

My cataplexy spells was said o had mono when I was younger. The cataplexy is the worst. You feel weak from head to toe,can't talk,can't hold your head up let alone control you body,basically o become… read more

September 19, 2023

Narcolepsy And Disability

A MyNarcolepsyTeam Member asked a question 💭
Alexandria, VA

I have narcolepsy. Which explains so very much now. Alot of things make sense. I won't get into my whole sappy life, so here goes my question
I have multiple diagnoses
2 open heart surgeries for mitral valve replacement. Uncontrolled diabetes Ii, HBP, cholesterol, CHF, Rheumatic Heart Disease, Fibormylgia, back pain, Gastrointestinal issues, marjor depression, anxiety, PTSD....and newly diagnosed Narcolepsy. What are my chances for getting approved for disability??? I'm worn out… read more

A MyNarcolepsyTeam Member

I had all the problems all of u have . Plus a few more. But, when I applied for SS. After 9 permanent disabilities. I got approved because I have Chronic Depression

August 27, 2023

Does Anyone Have Less Severe Cataplexy And Could Explain What It Is Like?

A MyNarcolepsyTeam Member asked a question 💭
Boston, MA

I have read into cataplexy and there seem to be more major attacks (falling over and things like that) and more minor attacks (drooping of the face was mentioned). If anyone has the more minor attacks, would you mind trying to describe what it is like? I tried looking on the internet but there is nothing from an actual person with cataplexy's point of view.

The reason I'm asking: I tend to worry about things so it could definitely be my imagination but I have noticed when I find something… read more

A MyNarcolepsyTeam Member

I didn’t know what eye drooping was called. Thanks

August 27, 2023

Can Narcolepsy Be Bruoght On By Medications Or A Combination Of Them?

A MyNarcolepsyTeam Member asked a question 💭
Odin, IL
A MyNarcolepsyTeam Member

I now have 3 autoimmune syndromes and sleep apnea.

September 7, 2023

Where Else Do I Go When I Get No Help From Sleep Programs When I Get Is That "everything Is Ok"....no Problem Found ?

A MyNarcolepsyTeam Member asked a question 💭
New York, NY
A MyNarcolepsyTeam Member

looks great.. expensive...

June 5

How Do You Manage Triggers That Worsen Narcolepsy Symptoms?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

It’s hard to control my triggers esp. when my depression or anxiety kicks in. I can’t help those feelings

September 18, 2023

Have You Ever Known Or Heard Of Anyone Being Cured Of Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Lake Charles, LA

One of my children knows someone who professes to be cured from narcolepsy by changing her diet, took supplements, lost weight.

A MyNarcolepsyTeam Member

Hi Narco Guy. I feel your pain. It seems like this disease has stolen my life from me in so many ways. I am consistently looking for ways to improve my mental health, lose some weight and decrease… read more

August 14, 2023
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