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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Medication Are You Taking To Help You Sleep At Night?

By A MyNarcolepsyTeam Member 31 answers

How Does The Cold Affect Your Narcolepsy?

By A MyNarcolepsyTeam Member 20 answers

What Are Your Top Tips For Dealing With Narcolepsy In The Heat?

By A MyNarcolepsyTeam Member 17 answers

Does Anyone Else Experience "absent Sleep Attack" , Where You Don't Fall Asleep In The Typical Way But Get Brain Fog Moments?

By A MyNarcolepsyTeam Member 22 answers
502 questions

What Advice Are You Grateful To Share With Others About Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

By wearing a medical tag expalining what is narcolepsy by having full cataplexy attacks several times the same day sometimes show me the compassion, the attention, the care and support of people… read more

2 days ago

What’s One Thing About Narcolepsy That People Rarely Discuss But Should?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

I agree with, as well as experience all above mentioned symptoms!

4 days ago

Has. Anyone Taken Adderall. 30. MG. 1 TABLET. THREE. X DAYS

A MyNarcolepsyTeam Member asked a question 💭
San Antonio, TX
A MyNarcolepsyTeam Member

I did as well. I moved to Focalin. That medication, like Adderall, worked sooo much better for me that I was beyond impressed. Unfortunately, my insurance stopped covering it and I was forced to… read more

November 16

New User Question 1- Is There An App For This 2- Multi Group Access

A MyNarcolepsyTeam Member asked a question 💭
Smithtown, NY

Many of us with narcolepsy do not just deal with this as our disease manifestation of it and additions as we know include ADHD anxiety, depression, and for me some of those but also severe chronic fatigue. I guess my question would be is within this network or app or their sub groups for people that have these things or do you have to join a whole Nother group and if so, how because if we have learned anything when you have narcolepsy or chronic fatigue having too much information is more… read more

Blessed No Matter Circumstances

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

B1 is the most important vitamin and Dr. Berg strongly recommends supplementation :)

November 14

Is Anyone Out There Using Vitamin Supplements To Treat Their Narcolepsy Symptoms? Specifically, B Complex In Therapeutic Doses.

A MyNarcolepsyTeam Member asked a question 💭
Pinebluff, NC

I was diagnosed at age 11. I am 78 at this writing. I chose not to marry or have children after the diagnosing doctor told me my children would more than likely inherit this condition from me. Depression accompanies my condition. In about 1983, I learned that I needed to stop taking the prescribed medication Dexedrine due to its adverse side effects and long-term use dangers. It took me years to stop taking the Dexedrine and replace it with vitamin supplements. I had help from a Naturopathic… read more

A MyNarcolepsyTeam Member

I've taken
B-100 for
Many years.
It helps me
Feel more
Balanced. 💗

December 8

I’m Not On Any Medication For My Narcolepsy Is There Any Natural Medicine That Helps?

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

I've not tried it but I've read that CBD could be helpful for some people. There's an article on here you may want to read:

https://www.mynarcolepsyteam.com/resources/cbd-...

November 9

I’ve Been On Disability Since 2019 Due To IH And Other Relate Reasons. How Does One Make Friends When Isolated With No Work.

A MyNarcolepsyTeam Member asked a question 💭
Bronx, NY

Idiopathic Hypersomnia (treated like narcolepsy) and depression (also treated with medications).

A MyNarcolepsyTeam Member

Hey, I've heard good things about virtual book clubs, whilst it's all done over video calls I'd imagine people might still meet up in person every now and then for food or something. Doing something… read more

November 9

Is Anyone Taking Adderall Salt Combo For Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
San Antonio, TX

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

That happens to me but it one last a little while. I'm scared to eat anything because it makes me feel terrible .

November 1
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