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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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My Doctor Prescribed Wakix For Me Because Of My Narcolepsy And Cataplexy. My Insurance Company Is Covering It, Thank Heaven.

A MyNarcolepsyTeam Member asked a question 💭

Is anyone out there taking Wakix? Has it helped you? My concern are side effects, etc. Let me know what you think of it. Thanks!😴

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A MyNarcolepsyTeam Member

It's all poison

How Do You Guys Get The Most Out Of This Site? I See A Lot Of People Don't Come Online Frequently And I Need Support With The Functionality

A MyNarcolepsyTeam Member asked a question 💭
Keller, TX
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A MyNarcolepsyTeam Member

This site is very awkward and frustrating to use (for me) and navigate around in, as well as having huge, empty, space filling areas of…really, nothingness. I’m sure whatever professional website… read more

Would You Recommend People With Narcolepsy Not Have Kids If They Are Undecided If They Want Kids? If They Choose To Have Kids Any Tips?

A MyNarcolepsyTeam Member asked a question 💭
New Jersey, NJ

Im a young man in my 20’s and I'm married I don’t have any yet. Id like some my wife says she definitely wants some but i worry so much about my narcolepsy and how it would limit my ability to take care of them. I wouldnt want to hinder her or my children. Especially financially or just securing their safety. I don't want to put all the responsibility on my wife because my narcolepsy makes my reliability inconsistent. Any response or tips is helpful.

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A MyNarcolepsyTeam Member

Definitely do not let narcolepsy be a deciding factor in whether you have kids or not. I live without kids for a very long time and was happy. I now have a son and couldn’t be happier! Please please… read more

**Help The Murphy Family: Support For Food And School Clothes**

A MyNarcolepsyTeam Member asked a question 💭
Pawnee, OK

Hello everyone,

My name is Justine Murphy, and I'm reaching out for support for my family during these challenging times. I have narcolepsy with cataplexy, which has left me disabled and unable to work. This means my husband is the only one able to work, and it's been tough to make ends meet. We have three wonderful kids who need food and school clothes, and we're struggling financially

My kids mean the world to me. They are bright, energetic, and full of potential. As a mom, I dream of being… read more

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A MyNarcolepsyTeam Member

I've been fighting for disability for almost 4 yrs. I just had my last appeal approved to be sent back to the judge that denied me. It's a very hard battle, especially if you're younger (I'm 42)… read more

What Symptom Of Narcolepsy Do You Find Hardest To Manage?

A MyNarcolepsyTeam Member asked a question 💭
Birmingham, UK
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A MyNarcolepsyTeam Member

EDS

Wondering About Any Results / Opinions Of The Medication Xyrem?

A MyNarcolepsyTeam Member asked a question 💭
Owensville, MO

I am considering asking my doctor if/when possible I may try this medication. First wanted to find out how it has worked for anyone who has tried it.?.

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A MyNarcolepsyTeam Member

I wont try it. The warnings alone scared the crap out of me.

Getting Put On Vyvanse For My Narcolepsy. What's Your Opinion On It?

A MyNarcolepsyTeam Member asked a question 💭
Cedar Rapids, IA
A MyNarcolepsyTeam Member

I take 30mg of Vyvanse at 6am, 20mg at 11am ,20 mg at 3pm and if needed, I am prescribed a booster of IR Adderall 10 mg and I take that around 5pm. I still have trouble with my EDS. I am just thankful… read more

Anyone Else Having Issues With The Adderall Shortage? Anyone Else Noticing A Difference With The Different Brands And Manufacturers?

A MyNarcolepsyTeam Member asked a question 💭
Holland, MI
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A MyNarcolepsyTeam Member

Omg! Yes! Last month I got mine from Walmart because nowhere in over 109 miles had it and it was like I was taking nothing !

Does Anyone Else Have Tachycardia Along With Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Scottsdale, AZ
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A MyNarcolepsyTeam Member

I’m on modafanil & Ritalin. I had been put on a beta blocker for an arrhythmia years before. Haven’t had any problems.

What Narcolepsy Symptom Do You Have That You Didn't Expect?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
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A MyNarcolepsyTeam Member

You are def not alone. I gained a lot of weight too,150 lbs. I've been going to the gym consistently for like 10 months now. I have lost 45 lbs. It is tough to lose weight specially as we get older. I… read more