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Did Anyone Else “diagnose” Themselves First?
Has anyone else figured out that they had narcolepsy before their doctors? I always have trouble getting my doctors to truly listen to what I’m saying, and for them to not say that EVERYTHING wrong with me is because of my anxiety/mental health. No one would listen, so I talked to my psychiatrist and told HIM I was pretty sure I had it, told him my symptoms... HE referred me to a sleep specialist, I did the studies, and now it’s confirmed. I’m 32. I’ve been having symptoms since I was a kid. 8th… read more
It sucks that alot of people say the same thing. Doctors need to be more involve and if they really have a passion for their career, that they went to school for so many years. They should start… read more
How Well Does Modefil Or Provigil Work For EDS And /or Cateplexy?
Cataplexy
Is there anyone who has experienced cataplexy on a daily/regular basis? & If so what exactly do you experience during an attack? Was anyone misdiagnosed with Pots or epilepsy?
My cataplexy spells was said o had mono when I was younger. The cataplexy is the worst. You feel weak from head to toe,can't talk,can't hold your head up let alone control you body,basically o become… read more
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