Is There Anything That Helps You To Lead A Normal(er) Life?
Have had a diagnosis of narcolepsy with cataplexy for about 10 years. While sleep was always important to me, I never knew it was narcolepsy until I started collapsing at work. I was embarrassed at what was happening and withdrew from life to continue to hide it. I did my research and suspected cataplexy. A couple of doctor visits later it was confirmed. What to do about it? Doctor prescribed Xyrem at night. Took some getting used to, but it helps with sleep. Crazy, a narcoleptic needs… read more
Wakix And Cateplexia
If any of you have cataplexia and are taking Wafix?
How does it work, does it reduce, reduce or stop your cateplexia?
George W.
Thank you Elizabete. Are you doiing anything different to try and reduce your cataplexy, meds, supplements, oils, CBD?
George W.
Thoughts / Success/ Failure With Wakix?
I started Wakix about 3 weeks ago. I can't take the full dose due to a medication interaction with another med I take. I think it's making a difference. I do feel more "awake" throughout the day, instead of only getting the normal 1-3 hrs of feeling "ok, kind of awake". I take it as soon as I wake up ( decide to get out of bed) along with my normal 20 mg Adderall. With Adderall alone it's more of "my body is forced awake but my brain is far from it" type of awake. The only downside, if it's… read more
I used wakix for about a year , starting off with the smallest dose and slowly going up , personally it didn't do anything for me at all
Is Anyone With Type 1 Narcolepsy, Which Includes Cateplexy, Had Any Success With Meds Which Help Reduce Cateplexy? Prescription Or Other?
Wakix?
Has anyone been able to get on Wakix? My doctor has spent hours and hours per patient attempting to get them on Wakix with no success! What is the deal?
Hoping things have gotten better and you can stay awake longer for driving.
What Narcolepsy Meds Work For You?
I've tried almost all of the narcolepsy meds and nothing worked. I'm on Adderall 20mg 3 times a day... which barely work all day, and I take Trazodone 150mg at night (which work great) to sleep.
My Doctor Prescribed Wakix For Me Because Of My Narcolepsy And Cataplexy. My Insurance Company Is Covering It, Thank Heaven.
Is anyone out there taking Wakix? Has it helped you? My concern are side effects, etc. Let me know what you think of it. Thanks!😴
It's all poison
Doc Prescribed Wakix. Anyone Out There Taking It? Has It Helped At All? Have You Had Any Bad Side Effects? Thanks For Any Feedback.
I’ve Been On Adderall For Years & It’s No Longer Effective. What’s A Good Med That’s Similar For Narcolepsy ??
I have been on just about every medication there is for narcolepsy. I am currently on Vyvanse and that seems to be working
Xyrem To Xywave
Has anyone changed from xyrem to xywave? What is your experience with either of them? Both have changed the taste, and what foods I eat, has that happened to you?
I Also tried the Wakix not on a clinical trial and it did nothing for me. It was like I was not taking medication at all.