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So My Question After My Last Post Is What Your Plan For Future With No Meds .
ok I dont do meds. Tried and found it to be a rabbit hole with a moving ball. Here's my best recommendation. Keep a journal. Don't expect to rest like others. Find out your triggers and don't do them… read more
What Are New Medication’s That Have Come Out In The Last Year For Narcolepsy?
Good question I don’t know, but I read about something called sodium oxybate.
Is There Anyone In The Triangle, NC Area Able To Recommend A Neurologist Who Specializes In Sleep Disorders?
My current facility is Raleigh Neurolgy in Cary. I'd been seeing Dr. Perkins since diagnosed in 2008. He left the facility in Apr. 2024. They reassigned me to another physician, however my May appointment was canceled. Rescheduled to July. Canceled. Rescheduled to Oct. Canceled. Reschedule date is now Apr. 2025. At this point it's been a full year since I have been seen, and I'm SOOOOOOOOO over this madness. Referrals are appreciated.
Do You Follow A Specific Diet To Help With Narcolepsy?
When I was following a gluten free and more natural foods I felt a lot better, I try to do it as much as possible but I travel long distances and it makes it very difficult.
Has Anyone Found Exercise To Be Helpful In Either Managing EDS Or Improving Nighttime Sleep Quality? Please Share Type & Timing Of Workouts.
Hi I Have Type 1 Since Birth And I Am 65. Is There A Non-Apple Accurate Sleep Device I Can Wear 24/7? I Cannot Stand Iphone/iwatch Anymore.
Disapponted
Does anyone know if people in the us can receive disability from social security for narcolepsy. How do you find a job that lets you sleep on the job?
It’s not but it’s a start
Which Narcolepsy Symptom Surprised You The Most?
Yep! There have been many a weekend that I have used this super power…
Would You Recommend People With Narcolepsy Not Have Kids If They Are Undecided If They Want Kids? If They Choose To Have Kids Any Tips?
Im a young man in my 20’s and I'm married I don’t have any yet. Id like some my wife says she definitely wants some but i worry so much about my narcolepsy and how it would limit my ability to take care of them. I wouldnt want to hinder her or my children. Especially financially or just securing their safety. I don't want to put all the responsibility on my wife because my narcolepsy makes my reliability inconsistent. Any response or tips is helpful.
Definitely do not let narcolepsy be a deciding factor in whether you have kids or not. I live without kids for a very long time and was happy. I now have a son and couldn’t be happier! Please please… read more
Do You Sleep When You Want Or Do You Stick To 7 To 8 Hours? If You Stick To 7 To 8 Hours Do Have More Symptoms Or Less?
I try to stick to my bedtime schedule but if I need to nap during the day I do. Unfortunately my meds keep my brain awake but not my body during the day, so not many times I can nap. Even with meds… read more
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