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Do You Sleep When You Want Or Do You Stick To 7 To 8 Hours? If You Stick To 7 To 8 Hours Do Have More Symptoms Or Less?
I try to stick to my bedtime schedule but if I need to nap during the day I do. Unfortunately my meds keep my brain awake but not my body during the day, so not many times I can nap. Even with meds… read more
What Are Your Top Tips For Dealing With Narcolepsy In The Heat?
I wind up taking naps. When it's humid and hot I take more than one nap a day. And one occasion I wasn't able to stay awake for more than probably an hour.
I do use the air conditioner but for some… read more
Does Narcolepsy And Lupus Go Hand In Hand
I have both and immune disorders along with allergies and intolerance to foods.
They are both autoimmune disorders, and usually if there's 1 there's more.
Anyone Know What The Social Security Disability People Think About Narcolepsy.
The judge that I had actually had "The Inspire implant she has cured her narcolepsy." HOW can she have used that!! And that's just one of the multiple incorrect things listed. It's not even possible… read more
How Do You Exercise When Your Meds Aren't Working And You Can Barely Get Out Of Bed- LITERALLY?
Great advice Rita2
Adderall
My doctor won't give me adderall 30. MG. 1 tablet. 3. Times a day. I was taking it since 2017. Prescribed. By the doctor that diagnosed. Me. With narcolepsy. Then. They changed Dr's. On me. What do I do?
I am sorry but for three years my son has been a genie pig docs having him trying everything else but what worked for him - which caused him to lose of his log and where he was living along w all his… read more
Could Someone Suggest A Provider In The Northern NJ Area Who Treats Narcolepsy?
I suffered a TBI in 2013 and seemed to have memory issues, and mild cognitive impairment since. I had been a Microbiologist for 25+ years in a hospital. Most will say I don’t appear to be disabled and quite intelligent. But I can’t even do math now and I have multiple “to do lists” I write, re-write daily, I forget medications and sometimes to eat. I seem to struggle with sense of time. I can be on my phone texting for hours and wonder why my hands hurt, I think I’ve been on the phone a much… read more
Setting a timer sounds like a good idea to keep me on track. Thank you for the suggestion.
Why Does It Seem The Meds They Have You On Work Sometimes Better Then Other Times?
My condition seems to be independently quirky as well. Also, I have to take a break from meds once in awhile & just sleep. Seems the meds cause me to use up whatever it is that my brain has in short… read more
Anyone Find Anything To Help Other Than Prescription Medication?
Definitely scheduling naps like JCTheNodsy said. I have other issues that require me to also be careful about food intake (amount and time) otherwise I get insanely tired so maybe check if you get… read more
Narcolepsy. And Ptsd. Does Anybody Have This Combination?
Yes I have both…..
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