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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Narcolepsy Symptoms Keep You Up At Night?

By A MyNarcolepsyTeam Member 19 answers

How Does The Cold Affect Your Narcolepsy?

By A MyNarcolepsyTeam Member 20 answers

Do You Follow A Specific Diet To Help With Narcolepsy?

By A MyNarcolepsyTeam Member 14 answers

Does Anyone With Type 2 Narcolepsy Ever Experience Jerking In There Sleep

By A MyNarcolepsyTeam Member 6 answers
497 questions

What's A Common Misconception About Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

When describing the symptoms of narcolepsy, excessive sleepiness is overstated while tiredeness is understated. Personally, I 've been feeling tired the biggest part of my life. Sleepiness by means… read more

September 3

Where Else Do I Go When I Get No Help From Sleep Programs When I Get Is That "everything Is Ok"....no Problem Found ?

A MyNarcolepsyTeam Member asked a question 💭
New York, NY
A MyNarcolepsyTeam Member

looks great.. expensive...

June 5

Hello! I Am Moving From The US To Spain For School. Does Anyone Have Experience In Obtaining Medication In Europe, Specifically Modafanil?

A MyNarcolepsyTeam Member asked a question 💭
Tampa, FL

I have diagnosed Narcolepsy, with 200mg Modafanil 2x a day.

A MyNarcolepsyTeam Member

Is it helping you? My sleep doctor recently started me on 250 MG Armidafinil and 30 mg of dextroamphetamine.
It helps, but what has worked best for me is Armo along with 50 MG Vyvanse.

July 15

Just Read A Little About Something Called WAKIX. Anyone Out There Had Any Experience With That ?

A MyNarcolepsyTeam Member asked a question 💭
Bangor, ME

Cataplexy knocked me down hard yesterday. I was at a public event so it was
quite embarassing and depressing.

A MyNarcolepsyTeam Member

Yes I hate this so bad , it effects me alot worse when it's really hot out.

May 22

Does Anyone With Type 2 Narcolepsy Ever Experience Jerking In There Sleep

A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Yes and cramps get so bad no help. So they added flexirel at night. Sleep at night all night. Unusual for me. I'm currently on 40 mg of Prednisone for a different issue. So last 5 days been awake… read more

May 31

Has TMS Helped Anybody?

A MyNarcolepsyTeam Member asked a question 💭
Kcmo

What Tips Would You Share To Help With Seasonal Allergies?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
A MyNarcolepsyTeam Member

My tip: always start your regimen well before the season begins. This strategy has never failed me ❤️

August 4

Using Ozempic For Weight Loss, Help The Narcolepsy To ,,

A MyNarcolepsyTeam Member asked a question 💭
Connecticut, CT
A MyNarcolepsyTeam Member

How?

November 9

I Don't Even Know How It Feels To Be Wake Up, I Get Jealous Of People That Has Energy And Happinesses

A MyNarcolepsyTeam Member asked a question 💭
New Martinsville, WV

I thought being sleepy all the time was the way of life, I hate it so bad

A MyNarcolepsyTeam Member

Not to dwell on the negative, but we all truly understand why sleep deprivation is used as a means of torture.

April 15

I Am 50 Years Old I Have Narcolepsy + Cataplexy I Can No Longer Do Much Of Anything Anymore Sitting I'm Asleep Has Anyone Got SSi For This

A MyNarcolepsyTeam Member asked a question 💭
Fort Myers, FL
A MyNarcolepsyTeam Member

I finally got disability, with the help of an attorney. They denied me multiple times and then they had to do an occupational evaluation. After the evaluation they came up with one job I could do… read more

April 16
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