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Has Anyone Been Diagnosed With Fibromyalgia? If So, How Did Your Doctor Diagnose It When The Symptoms Are So Similar To Narcolepsy?
Also, what meds do you take for fibromyalgia? Do they work?
Yes but not able to take nerotin or gabapentin so help is off. Never heard of duloxetine
Everyone Have A Great Week 😁
Thanks you too
Advice?
My boss called me in for a meeting today because i've been consistantly late. I just cannot get up in the morning. No matter how many alarms I set or how many automated things I set up I sleep through it. The only thing that gets me up is the sheer panic when I realize I overslept. Again. It's affecting my job performance and my self-esteem. I have an appointment with my sleep specialist this thursday but I'm not sure there is anything that can be done. I'm already on medication. I stay awake… read more
Are you able to ask for ADA workplace accommodations? Check out the job accommodation network online for assistance with the process
Could You Share Any Dietary Changes And Tips That Have Helped With Narcolepsy?
Monster Energy Drinks are my enemy!!!
5 Years Old With Narcolepsy Type 1
Hello
Does anyone have a child who was diagnosed when they were really young? Wondering abt their medication and overall experience
I was diagnosed in the early 80s I was 11. I started on Adderall then.
Can A Person Take Narcolepsy Med With Bupenorphine?just Curious.
Yes
I've Been On Xyrem For Several Years And My Prior Authorization Has Been Denied.
My doctor will appeal it, but how can the insurance company decide that I magically no longer need this medication???
Every year a insurance company can and most likely will drop prior authorization and you start over. I always make sure every year my insurance pays for everything the next... everyone needs to know… read more
Has Anyone Lost Weight After Diagnosis Of Narcolepsy/treatment?
I have consistently been losing weight for a few years without trying. I’ve lost around 30 lbs in 2-3 years. Doctors are disagreeing on the cause, one seems to think it’s my meds for narcolepsy, although I’ve only been on those six months. Curious to know if anyone lost/gained weight once diagnosed and beginning treatment?
Over thirty pounds! I think it’s all the amphetamines.
I know people will hate me for saying this, but I hope I don’t lose too much more. I’m losing some muscle with it and, let’s just say, at my age… read more
Has Anyone Ever Taken Wakix While Pregnant?
I spoke with my sleep specialist, my doctor, the manufacturer, and panther x pharmacy. They did not have any information if the medication is safe to take when pregnant. They said there were animal and few clinical trials but I don't know. My sleep specialist told me to ask my doctor. My doctor told me to ask the manufacturer and it seems like I am getting the runaround. The pharmacy told me that there are few clinical trials with pregnant women and medications with lots of medication not just w… read more
I would definitely read up on that
Does Anyone Sleepwalk Since Diagnosed? I Have Started Doing That Some And Also Doing Things I Don't Remember Doing.
When I have an episode of dozing, as I am waking up, I start talking strange things. I really don't know how to explain it. So weird and strange!
While I have never experienced sleep walking, I do sleep talk! Apparently it is a part of narcolepsy. I also experience very vivid dreams which tend to blur with reality. This has led to me running… read more
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