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Best Days

A MyNarcolepsyTeam Member asked a question 💭
Girard, GA

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

October 20, 2020
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A MyNarcolepsyTeam Member

When I had a great day at work lol I felt like a robot😂 hate that my boss was there and saw bc on my down day, he was expecting the same performance & I couldn’t. It’s still difficult trying to get my job to understand

February 26, 2021
A MyNarcolepsyTeam Member

I can totally relate to that feeling. My days of feeling good and having energy to get things done are few and far between so when I do feel energized I would overdo it and then pay for it for days after. Now when I feel good I just enjoy the feeling and do about half what I think I can

February 24, 2021
A MyNarcolepsyTeam Member

Totally good days are very rare for me...like once a year. My problem is it always happens when people around me poop out early. I was on vacation 3 years ago at Myrtle Beach. Woke up one day feeling very refreshed. By 6:30, 7 pm i still felt good so wanted to go out for fun. We had dinner at 5:30 and after everyone got their bellies full they were done for the evening. I was so upset because there i sat feeling good and actually had energy and didn't get to go anywhere or do anything. What a waste. I about cried because I knew it would be such a long time before I ever felt that way again.

Anyway I normally overdue things if I feel good. I try to get everything done ive not been able to do due to EDS in one day then pay for it the next day.

February 10, 2021
A MyNarcolepsyTeam Member

Hi Charles,
Nice to meet you. Let's see I have 2 girls 25 and 31. I'm divorced. I am 59. Live in Girard Ohio. Grew up in Hubbard Ohio pretty much all my life till last year. I have 5 brothers and 4 sisters. Parents are in heaven. Mom died of Colon cancer in 1975 and dad of leukemia in 2003. I'm happy and thankful for many things. I have one granddaughter Lily she is a year and A half. Had Narcolepsy since I was ayoung girl. Now your turn then I will continue.

October 28, 2020
A MyNarcolepsyTeam Member

I would have to say that my best days with narcolepsy is always when I am with my niece and nephews, on a weekend and just hanging out at home. They keep me busy, but they also nap so I can nap with them.

October 21, 2020

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