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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sleep Paralysis

A MyNarcolepsyTeam Member asked a question 💭
Sacramento, CA

I feel like everything inside me is shaking real fast. and I have audio and visual hallucinations, when I realize that I'm having one of these attacks, the hallucination stops, and I am aware of what is happening, and try to wake up. But I can't break out of it, and I get scared, thinking I'm going to die! Then I think, If I could just open my eyes, move some part of my body, a finger, even, or yell out for help, that It would stop but I cannot move and everything in my body feels like I'm… read more

March 16, 2021
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A MyNarcolepsyTeam Member

Going with it is good advice. It's difficult to do if you are a person who likes to be in control. Narcolepsy has a way of forcing a person to be more easygoing and accepting that there are some things that are out of our control.

April 22, 2021
A MyNarcolepsyTeam Member

I experience the same exact thing & it's so scary! I have an easier time now that I'm older pulling myself out of it but it's still really hard sometimes it's like I try so hard to move some part of my body especially my eyes but it's like my eyelids are so heavy that it takes every bit of strength I have in me to even slightly get them open and then by the time I do come out of it I feel exhausted & terrified to the point where I dread even going back to sleep because it usually happens again. Everyday that I wake up I feel like crap I'm more tired when I wake up than I was when I went to bed literally and my entire body hurts like I've been hit by a truck and it last through part of the day until I start moving around then it gradually subsides. I never ever have woken up feeling good or refreshed but when I was younger it was so much worse I used to have a lot of hallucinations visual mainly and I would always see something really scary and I would have the most creepy feeling the whole time but I would just have to deal with it until I was able to get out of it cuz I couldn't control anything but it was something that made me feel like there was something seriously wrong with me or that I was crazy or that there was some type of evil presence around me every time I went to sleep because I would literally see this demon creature sitting at the edge of my bed with red eyes and I would be so terrified but I couldn't move or scream out so I would just remain there shaking and scared until it was over God I hated my teenagers LOL

January 20, 2022
A MyNarcolepsyTeam Member

I used to have this when I was young. I started going with it and would try to go back to sleep until the rest of my brain was ready to wake up.

April 4, 2021

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