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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Narcolepsy Negatively Affected Anyone Else’s Relationships?

A MyNarcolepsyTeam Member asked a question 💭
Commerce, GA

My narcolepsy has gotten much worse in the past few months and my dr and I are trying different things to find something that works. My boyfriend gets frustrated because he feels like I sleep too much and that I’m spending so much time and money on dr visits and medicine and it’s not helping. I fall asleep sitting up while we are having a conversation and that hurts his feelings like I don’t care about what he is saying which isn’t true at all. I don’t know how to make him understand. I’m about… read more

May 2, 2021
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A MyNarcolepsyTeam Member

Maybe I can help. First of all, my name is Jeff. I of course am Narcoleptic too. I ask a friend/family member to join me at my upcoming sleep Dr appointment. After visit was over (and l got there attention back). They couldn't believe
that this is a serious disorder.
Now they wanna go each and every time with me. Why not, I'm not even supposed to drive.....lol

May 24, 2021
A MyNarcolepsyTeam Member

I think that, for whatever their reason is, some people seem to just refuse to be educated on this. Maybe it's ... If they can't see or feel it, it doesn't exist.!?. Either way I cannot (nor do I want to) control what others think/know/etc. It is enough to take care of ourselves regarding this condition & not even waste the energy or time trying to conform to "their standards". It simply cannot be done!

February 4
A MyNarcolepsyTeam Member

It hasn’t really gotten any better. I’ve kinda given up on trying to get enough sleep but I think the issue is really more than just my narcolepsy. I’ve just been burning the candle at both ends so to speak and struggling through the best I can.

July 29, 2021
A MyNarcolepsyTeam Member

Good Morning Miranda, l was just wondering if you were getting along any better with the situation you posted about on your last comment. It seems it's been a couple months and l was hoping you and your boyfriend were able to find a solution. I hope you have a great day, Jeff and Team.

July 29, 2021

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