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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Take For Treatment?

A MyNarcolepsyTeam Member asked a question 💭
Newark, DE

Over the years I've avoided the doctors after being diagnosed to avoid loosing my license. So I mega dose caffeine. So that is my medication for now. It's tricky and one day will probably kill me. It has resulted in high blood pressure and crazy heart problems, but it kinda works. What's yours and does it work?

June 18, 2022
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A MyNarcolepsyTeam Member

The 15 min nap is awesome

June 19, 2022
A MyNarcolepsyTeam Member

I was already too anxious to drive even before my diagnosis, so I willingly handed my license over when it came up for renewal after my N1 diagnosis.
Currently on Provigil, Ritalin, and Wakix, plus Seroquel + lorazepam at night to help me sleep. I also intermittently use cannabis (w/ my docs' permission), and I get 1 caffeinated drink per day.
I already have preexisting cardiovascular, pulmonary, and hematological issues (among other things...), so self-medicating is definitely a no-go for me.

Edit: no longer needing lorazepam or cannabis. My doctor agreed to switch me from Ritalin to Zenzedi (dextroamphetamine), and we also added baclofen at night to hopefully help me wake up easier.

July 8, 2022 (edited)
A MyNarcolepsyTeam Member

Lots of caffeine!

June 27, 2022
A MyNarcolepsyTeam Member

I take Armodafinil( nuvigil) daily in the morning even on the weekends.. I find it works better when I get adequate rest. When i feel it wearing off or find myself getting sleepy.. I get up, move around and make sure I keep moving.. if I can. I take a nap.

June 24, 2022
A MyNarcolepsyTeam Member

I have been taking methylphenidate (called dexedrine in the old days) for 61 years : 5mg. every two hours. Along the
way other things such as provigil and vivactil were tried but weren't sufficient. At age 75 I am still hanging on and
napping when necessary : short naps of a few minutes usually 2 or 3 times daily. Usually I can struggle on without
the naps but life is so much better with them.

February 4, 2023

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