What Symptom Of Narcolepsy Do You Find Hardest To Manage?
Sleep Attacks, when the barometric pressure gets below 30mb or it gets to be 78⁰ in the house, often have a sleep attack. I don't know where they got the idea of 20 minute
naps and feeling refreshed after that- I sleep for 2 hours and wake up groggy and feel like my; energy has been ciphoned off. Hypnogogic jerks and night terrors suck too, though.
At first I didn't know what was happening to me,a numbness in my face would occur, my eyes would be barely open (as if I am high😀) then I experience a paralyzed feeling in my tongue, which causes me to slur if I'm trying to speak. As a CNA doing Homecare I try to stay busy or if my symptoms are uncontrollable I'll take a break from what I'm doing until my sleepiness pass. It's difficult at times,but I have to stay focused for my client.
The most difficult for myself is the Cataplexy, I have severe muscle loss and end up in the floor. Secondly I feel I only sleep 10 - 15 mins. Then I'm wide awake. Just Frustrated.
It's strange when you actually feel a wave of sleepiness. It is worse at work. I can feel it coming but I can't leave so I get up and move around.
For me, it took a long time for me to accept that this was actually happening to me so I had a struggle with I’m just lazy, I lack motivation, like it was all me and nothing to do with narcolepsy. So for me, the hardest part is knowing if my symptoms are coming from narcolepsy or whatever normal is
Can Someone Please Help Me Understand Why Narcolepsy Takes So Long To Diagnose? What's Wrong With Our Society?
How Do You Manage Your Narcolepsy At Work?
Does Any One Eles Have Narcolepsy1 And Sleep Apnea?