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Does Anyone Else Get Sleep Attacks But Don't Fall Asleep?

A MyNarcolepsyTeam Member asked a question 💭

I have narcolepsy with cataplexy and I would say moderate to severe eds, I get sleep attacks but I don't go to sleep. I fight it so hard and try to stay moving. Also I have racing thoughts that keep me from relaxing very much. Yet I feel like I could fall asleep at any moment. It is so crazy! Please let me know if you experience anything like this.

August 1, 2023
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A MyNarcolepsyTeam Member

Hi. Yes I get this to where sometimes I feel very tired and fatigued but I lay down and can only rest not actually fall asleep. Could be the meds keeping me awake while my body just can’t keep up?

August 3, 2023
A MyNarcolepsyTeam Member

It did, but took 6 months or so before I got into a routine

August 20, 2023
A MyNarcolepsyTeam Member

Did xywav help you right away? I tried it one night but I was up every single hour so I just didn't take it anymore. Decided I was a freak of nature and now just take Adderall to get through my days.

August 20, 2023
A MyNarcolepsyTeam Member

thats how i was before getting on xywav. at one point i was sleeping 23 hours a day for almost 6 months straight and was fortunate that my boss didnt fire me

August 19, 2023
A MyNarcolepsyTeam Member

Absolutely. I feel like I'm trapped in a body that doesn't work! When this happens I go to my "insight timer" app and listen to a guided meditation. So helpful.

August 19, 2023

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