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Which Meds Have Worked For People On This Site? See Below For Further Details.

A MyNarcolepsyTeam Member asked a question 💭
Boise, ID

What success have people on this site had with the various drugs to treat narcolepsy and cateplexy
* Modafinail did NOT seem to work for me or maybe I did not give it enough time
*Sunosi worked for me somewhat, but, I did not realize it until I ran out of pills and was off of it for several days.
* My neurologist prescribed Wafix. I went to the pharmacy to pick it up and was outraged at the price! The price WITH insurance would have been $653 for 2.5 weeks!! The pharmacy tech told me that… read more

October 22, 2023
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A MyNarcolepsyTeam Member

I finally got approved from NORD to pay for Wakix ! I'm starting my 4th week now
so I hope to see an improvement soon. NORD is National Organization of Rare Diseases. I filled out their application and was accepted. The acceptance is not based on low income but on your need for the drug.
I am not dropping things as often , I think. I seem to sleep better at night being able to sleep up to two hours straight which is an improvement. If I add my nap times I get about 3 hours sleep per night. I also nap during the day. I am told that
Wakix takes up to 8 weeks to fully work for you. Still waiting for some normality in my life.

January 7
A MyNarcolepsyTeam Member

Yes, I did George. My price for 30 days w/o insurance was 2,043.00 for 30 day’s supply. I just got a letter from my insurance company saying that the approved it. BUT, I still don’t know what my copay is. I reorder it tomorrow so I should find out soon. They can tell you til after you order it and it’s ready for delivery—-Like , oh by the way your copay is 2,000.00 is that cash or credit.
Ahhh just wait I’m trying to get a second mortgage on my house so I can take it for a year….,

November 1, 2023

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