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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which Meds Have Worked For People On This Site? See Below For Further Details.

A MyNarcolepsyTeam Member asked a question 💭
Boise, ID

What success have people on this site had with the various drugs to treat narcolepsy and cateplexy
* Modafinail did NOT seem to work for me or maybe I did not give it enough time
*Sunosi worked for me somewhat, but, I did not realize it until I ran out of pills and was off of it for several days.
* My neurologist prescribed Wafix. I went to the pharmacy to pick it up and was outraged at the price! The price WITH insurance would have been $653 for 2.5 weeks!! The pharmacy tech told me that… read more

October 22, 2023
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A MyNarcolepsyTeam Member

I finally got approved from NORD to pay for Wakix ! I'm starting my 4th week now
so I hope to see an improvement soon. NORD is National Organization of Rare Diseases. I filled out their application and was accepted. The acceptance is not based on low income but on your need for the drug.
I am not dropping things as often , I think. I seem to sleep better at night being able to sleep up to two hours straight which is an improvement. If I add my nap times I get about 3 hours sleep per night. I also nap during the day. I am told that
Wakix takes up to 8 weeks to fully work for you. Still waiting for some normality in my life.

January 7, 2024
A MyNarcolepsyTeam Member

Yes, I did George. My price for 30 days w/o insurance was 2,043.00 for 30 day’s supply. I just got a letter from my insurance company saying that the approved it. BUT, I still don’t know what my copay is. I reorder it tomorrow so I should find out soon. They can tell you til after you order it and it’s ready for delivery—-Like , oh by the way your copay is 2,000.00 is that cash or credit.
Ahhh just wait I’m trying to get a second mortgage on my house so I can take it for a year….,

November 1, 2023

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