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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Meds For Cateplexy?

A MyNarcolepsyTeam Member asked a question šŸ’­
Boise, ID

Does anyone who has type 1 narcolepsy and takes meds, how do these help or no, to ease, or reduce your cateplexy spells? What are the meds you take?
I take sunosi for the sleepiness, but it does nothing to ease my cateplexy.

I would appreciate any input please, than you.

George W.

December 9, 2023
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A MyNarcolepsyTeam Member

George, I now take CBD gummies to sleep and I find that there are some afternoons that I do not need a nap. It has definitely changes my life a bit.

I hope you find more information at Stanford University Sleep Center!!

May 9
A MyNarcolepsyTeam Member

They help they help sometimes depending on the stress if it's not too high then you can function the next day.

May 19
A MyNarcolepsyTeam Member

Thank you TeriGranados,
I will continue to check with my doctor for suggestions.
I am checking into the possibility of visiting the Stanford University Sleep Center for a possible evaluation.

GeorgeW

April 26
A MyNarcolepsyTeam Member

George, I took Sunosi for years for my daytime sleepiness. I had to stop it due to loss of appetite and excessive weight loss.

So Iā€™m exhausted all the time and I am fortunate to be able to take 3+ hr daily naps.

April 23
A MyNarcolepsyTeam Member

I've been having problems with my legs an almost collapsed at work several times. Truly I was standing at work an I usually catch myself before passing out from sleepless ness. It's so hard to catch yourself šŸ˜”šŸ˜”šŸ˜”šŸ˜”šŸ˜”šŸ˜”

December 14, 2023

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