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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Struggle With Getting To Places On Time? (No Matter How Hard You Try Or The Hoops You Jump Through To Get There On Time) 😩

A MyNarcolepsyTeam Member asked a question 💭
Rochester, NY

I am consistently always always always 5-10 minutes late. The perfectionist inside this Narcoleptic body absolutely hates it, to the point of extreme self hate and I swirl down into depression and very low self esteem, if any. I don't have much support from family or friends. They are always quick to point out my flaws and especially my lateness or cancellations with getting together because I'm too afraid to drive (as I can be having a really really really bad day and I don't feel safe driving)… read more

January 22
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A MyNarcolepsyTeam Member

BRINI… If you have diagnosed Narc, they (by law) have to give a little on that because it’s simply insane to buzz around when you can’t stay awake or your spending every second FIGHTING SLEEP MONSTERs to go out and pretend the people you are around aren’t monsters in skin bags.

I’m never saying take advantage or threaten anyone. Maybe just come out and be honest…. If it’s all becoming a swirling toilet maybe do what everyone of us hate. Just lay it out there. Maybe they could let you work from home…

I have no choice anymore because Narcolpsy and Spinal Cord Injury basically it might be lunch before I can function sometimes. So I work at home PT for my old job and I’m self employed (trying to use my old automotive design and fabrication experience in Home Medical Equipment…

I have been fired from jobs only because I couldn’t stay awake and refused to tell them why… I dunno what it is? Somehow I feel ashamed to be so screwed up and not actually have any facts to why.. it sort of seems people don’t believe me so…

I usually don’t care to put myself in that horrible place. I totally understand if you feel the same. Sad part is LIFE waits on no one.

Good luck to you and I truly hope things go better soon.
Chance

January 24
A MyNarcolepsyTeam Member

Your husband needs to go to the doctor with you, so that the doctor can explain
the seriousness of your situation and the DANGER of driving.
How about Uber, can you use this service and therefore not worry about driving?
Why don't you get it a try and see hoiw it works.
Hang in there, do you have any close friends or members of your church group who could help you?

Best wishes

George W.

January 22
A MyNarcolepsyTeam Member

Chance, thank you for the advice and for making me laugh.😄

January 24
A MyNarcolepsyTeam Member

I’m gonna be late to my own funeral… (that would actually be funny) but yeah I’m that twisted… Sorry 😖

January 24

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