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Does Anyone Else Suffer From Iron Deficiency As Well As Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Raleigh, NC

I have a hard time figuring out if my Narcolepsy is acting up or if my iron is low. I cannot take iron pills and have to go in for infusions. It's frustrating because people get annoyed with me.

June 4
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A MyNarcolepsyTeam Member

I also am severely anemic.

October 9
A MyNarcolepsyTeam Member

I do.

October 8
A MyNarcolepsyTeam Member

I have to get iron infusions one to two times a year. My ferritin level dips down over time. Not sure why

July 9
A MyNarcolepsyTeam Member

Yes, I have for years, and am prescribed an iron supplement to take daily, which I have taken for years. It never seemed to help as much as it should've. At one point last year, my level was so low that my doctor almost sent me to get an iron infusion.
Weirdly enough, a few weeks ago they tested me and it was in the (lower) normal range for the first time in over 5 years! It was a noce surprise... Now I'm curious to see whether or not it will stay there?

Good luck to you!❤️

June 10
A MyNarcolepsyTeam Member

i do, every time i try and give blood I'm turned away, and when i have bloodcwork it's always low, i just had gastric bypass and now im on iron suplament and im not sure now if it's still low but i find out in two more week at my next blood work 🫤

June 5

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