Are You Frustrated With Finding Effective Treatments For Narcolepsy?
Yes. Very much so. Using stimulant meds and have had supply chain issues. Even was told by pharmacist at one point that I should tell my doctor to just get me some therapy for my lack of focus thinking I had adhd. Let’s say I shouldn’t have to fight to get my treatment that isn’t working much anymore anyway.
When I read all the answers.... in the first instant it seems interesting but in reality these answers are the cries of the heart. I am on a handful of medicines. Before going to bed I take Alganax 0.5 mg and Quetvell 37.5 mg. These two medicines put me to an uneasy sleep. After breakfast I get an excessive day time sleep attack. I take Prohiper 10 mg to ease this attack. But it does not work well. The whole day I feel sleepy. But if I take a nap after breakfast then I feel much better. It is not very possible for me. Because 5 days a week I have to go earn my living. And then after lunch I have to take Dogmatil 15 mg. I like it or not, these medicines help me to continue my employment (I am a teacher). Overall the life is miserable. It is only through my strong faith (Christian), prayers, determination and will power that I am able to earn a piece of bread. Keep it up guys.... look upward..... God is great.
I was able to work well with THC at night, CBD in the morning, and 5 to 10 mg of methylphenidate during the day. Now, since the supply chain issues, I am up to 40 mg a day and still need naps and always sleepy.
I was prescribed Vyvanse and Adderall for years. Taking them caused permanent damage to my heart. Now I can’t take the stimulants. It’s tough to stay awake and do things from my brain wanting to sleep and my heart struggling to pump blood & oxygen through me. Be cautious with the narcolepsy meds.
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