Connect with others who understand.

Sign up Log in
Resources
About MyNarcolepsyTeam
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Ever Been Diagnosed With Narcolepsy Type 2 Then Later Experienced Minor Cataplexy-like Symptoms. Like Uncontrollably Sleeping??

A MyNarcolepsyTeam Member asked a question đź’­
NC
July 17
•
Be the first to like/hug
A MyNarcolepsyTeam Member

I’ve been wondering the same thing. I was diagnosed 21 years ago when I was 28. It took years to get to the diagnosis because my lack of cataplexy symptoms made it harder, in fact they tried to say I had epilepsy (absence seizures) despite my eeg showing abnormalities but not conclusively epilepsy. Sleep tests proved it was narcolepsy without a shadow of doubt.
I live in New Zealand and our medication options are very limited and personally I don’t find them very effective. I moved and lived in England for a couple of years and was on very different medication which was amazing I actually felt great and had few symptoms….until I started developing new ones! I would get sudden muscle weakness in my face when I laughed a lot or was watching sad movies or just experienced strong emotions. It got worse and my whole head just drops and my torso kinda twitches. I was very used to vivid dreaming tormenting my nights but twice while I was in England I got up from the bed and just dropped like a rag doll and couldn’t move momentarily.
I’m back living in nz again now and back on Ritalin and things are almost back to how they were before but I do still occasionally experience face weakness especially if I have had a build up of lost sleep. My head also nods and drops and struggle to control my movements if I get to excited or laugh a lot.
I can’t help wonder if those symptoms will continue to get worse or not. So far they haven’t.
It certainly doesn’t feel like a clear cut line to me

August 25

Related content

View All

Is It Possible To Have Cataplexy Without Narcolepsy?

A MyNarcolepsyTeam Member asked a question đź’­
West Covina, CA

Did Anyone Else “diagnose” Themselves First?

A MyNarcolepsyTeam Member asked a question đź’­
Idaho Falls, ID

Does Anyone Have Less Severe Cataplexy And Could Explain What It Is Like?

A MyNarcolepsyTeam Member asked a question đź’­
Boston, MA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in