Anyone Ever Been Diagnosed With Narcolepsy Type 2 Then Later Experienced Minor Cataplexy-like Symptoms. Like Uncontrollably Sleeping??
I’ve been wondering the same thing. I was diagnosed 21 years ago when I was 28. It took years to get to the diagnosis because my lack of cataplexy symptoms made it harder, in fact they tried to say I had epilepsy (absence seizures) despite my eeg showing abnormalities but not conclusively epilepsy. Sleep tests proved it was narcolepsy without a shadow of doubt.
I live in New Zealand and our medication options are very limited and personally I don’t find them very effective. I moved and lived in England for a couple of years and was on very different medication which was amazing I actually felt great and had few symptoms….until I started developing new ones! I would get sudden muscle weakness in my face when I laughed a lot or was watching sad movies or just experienced strong emotions. It got worse and my whole head just drops and my torso kinda twitches. I was very used to vivid dreaming tormenting my nights but twice while I was in England I got up from the bed and just dropped like a rag doll and couldn’t move momentarily.
I’m back living in nz again now and back on Ritalin and things are almost back to how they were before but I do still occasionally experience face weakness especially if I have had a build up of lost sleep. My head also nods and drops and struggle to control my movements if I get to excited or laugh a lot.
I can’t help wonder if those symptoms will continue to get worse or not. So far they haven’t.
It certainly doesn’t feel like a clear cut line to me
Is It Possible To Have Cataplexy Without Narcolepsy?
Does Anyone Have Less Severe Cataplexy And Could Explain What It Is Like?
Did Anyone Else “diagnose” Themselves First?