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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are Your Top Tips For Dealing With Narcolepsy In The Heat?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
July 22
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A MyNarcolepsyTeam Member

Sadly none of the options are great. If I have to remain outside in the heat, then I sip on electrolytes or pickle juice while drinking lots of water. I avoid going between the heat and the AC. AC intensifies fatigue. Stay moving! If I can refrain from having to be outside, I stay inside and try and take a 40 minute nap during the time of day that I usually have the worst fatigue. That tends to help alleviate some of it. I have also found that chewing on a half a piece of neuro energy and focus gum helps tremendously!

July 23
A MyNarcolepsyTeam Member

I stay out of the high heat times of day-heat & humidity. I'm retired & not required to "get out there" to earn a living. I go out early morning & late afternoon/evening. Also, I have a "piddle place" with A/C where a fair amount of time is spent here in South Louisiana. It helps get us apart for "me time".

July 22 (edited)
A MyNarcolepsyTeam Member

I agree with Jennifer “stay moving, hydration, eating healthy, and naps.
I try to stay away from processed food as well.

July 24
A MyNarcolepsyTeam Member

I have Type 1 and my sleep attacks are worse with the heat. Try cooling your hands and feet. Sometimes that helps too

July 22
A MyNarcolepsyTeam Member

Thanks for the tips on bread and processed foods. K have been in restaurants and collapsed at the table. It makes me wonder what was in the food i was eating that had that affect.

August 4

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