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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which Narcolepsy Symptom Surprised You The Most?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
August 19
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A MyNarcolepsyTeam Member

I lost organizational skills. My brain seems unable to stay focused while doing paperwork, arranging travel, doing tax returns, making doctor appointments etc. Getting thoughts down is almost impossible, can't be concise, thoughts ramble. Before Narcolepsy, all this came easy to me.

August 20
A MyNarcolepsyTeam Member

Horrible Nightmares

August 20
A MyNarcolepsyTeam Member

Brain fog! Feeling like an idiot because I can't remember anything! Or trying to keep my mind on one task or another 😡

August 20
A MyNarcolepsyTeam Member

Before I found out that I had narcolepsy, Cataplexy!

August 19
A MyNarcolepsyTeam Member

At first it was the horrific nightmares stuck on repeat all night long till I felt like I was losing my mind. I have them under better control now but they have been replaced with other torturous dreams, vivid realistic recounts of memories both positive and negative. I guess it’s my brain trying to resolve emotional conflict or something?! It’s awful having to relive both the good and bad moments sometimes. For example my beloved dog died 10 years ago and I still dream vividly of her every night. 80% of the time near the end of my dream I suddenly can’t find her and spend “hours” panicking looking for her ☹️. I wake up sad every time, even after the happy dreams of her because it’s so real and vivid to me that my grief over her never fades.
Does anyone else have dreams like this?

August 21

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