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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What’s One Thing About Narcolepsy That People Rarely Discuss But Should?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
November 26, 2024
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A MyNarcolepsyTeam Member

How it affects your life in every aspect not just our sleep. Honestly most ppl look don’t take narcolepsy serious because we are warriors we don’t show the true struggle we face on the inside we make it look easy so they think that it is

November 26, 2024
A MyNarcolepsyTeam Member

Narcolepsy robs you of the life you had before you were diagnosed. Not only do you have all the symptoms discussed here, you also have changes in your mood, your memory, and how you feel about yourself. Depression is also a symptom and It robs you of your independence if you must give up your car. I just fell asleep writing this. I find also if I fall asleep with my phone available to me I will type and send some interesting texts that make no sense. Trying to explain these emails or texts is extremely embarrassing.

December 10, 2024
A MyNarcolepsyTeam Member

Definitely how it effects your body - You're not just tired, you're body aches like you've run a marathon after doing something normal like cooking a meal. Not only do you not have the mental energy for lots of things, you feel physically too weak to even try to "power through".

November 27, 2024
A MyNarcolepsyTeam Member

It impacts All aspects of your life, family, social, obviously work, driving or NOT driving, embarrassing falling asleep, people think you are lazy or not sleeping at night or partying all night with little if any sleep.

November 26, 2024
A MyNarcolepsyTeam Member

How misunderstood it is. How different the condition is for each person who has it. How intense the fatigue and need to sleep is for someone who has it - for me at least!

December 4, 2024

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