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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Advice Are You Grateful To Share With Others About Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
4 days ago
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A MyNarcolepsyTeam Member

Doing a deep search on AI can assist personal research. Today the Microsoft CoPilot AI (paid version) provided the best summary of how Narcolepsy can impact diet, that I have seen so far. The many AIs that are out there will get even better not just for us, but for our Doctors. That is my share/advice of the day

4 days ago
A MyNarcolepsyTeam Member

By wearing a medical tag expalining what is narcolepsy by having full cataplexy attacks several times the same day sometimes show me the compassion, the attention, the care and support of people around me. Living in a town of 20000 peoples, evn if this is the capital of the NWYT Yellowknife, show me almost every time the the compassion, the attention, the care and support of people around me. When I do grocering shopping tomy Independant grocery store I have a special chair waiting for me at the cashier, when I have an attack people stay with me until I wake up holding my head, putting something under it a bag, a t -shirt, packing my groceries, people after an attack who drive me back to my home (not so far), peoplewho show interest about my medical conditions by taking my pulse and be sure that I am still breathing. In time of Christmas we have still to remember ourselves there is till some humanities surrounding us, I am grateful to have around me such a caring and supportive community. Even with all the obstacles and difficulties which come with our disabilities, let's not forget those wonderful moments of hope.

3 days ago

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