What Advice Are You Grateful To Share With Others About Narcolepsy?
Doing a deep search on AI can assist personal research. Today the Microsoft CoPilot AI (paid version) provided the best summary of how Narcolepsy can impact diet, that I have seen so far. The many AIs that are out there will get even better not just for us, but for our Doctors. That is my share/advice of the day
By wearing a medical tag expalining what is narcolepsy by having full cataplexy attacks several times the same day sometimes show me the compassion, the attention, the care and support of people around me. Living in a town of 20000 peoples, evn if this is the capital of the NWYT Yellowknife, show me almost every time the the compassion, the attention, the care and support of people around me. When I do grocering shopping tomy Independant grocery store I have a special chair waiting for me at the cashier, when I have an attack people stay with me until I wake up holding my head, putting something under it a bag, a t -shirt, packing my groceries, people after an attack who drive me back to my home (not so far), peoplewho show interest about my medical conditions by taking my pulse and be sure that I am still breathing. In time of Christmas we have still to remember ourselves there is till some humanities surrounding us, I am grateful to have around me such a caring and supportive community. Even with all the obstacles and difficulties which come with our disabilities, let's not forget those wonderful moments of hope.
Found CHEEP Smartrings from Temu (dont use possible spyware app, use a webpage) are around 11 bucks. I found one at $7 free shipping.
It is so cheap they didn't program a 5 Rem Phase a night algorithm!
It is showing my xywav DEEP SLEEP filled nights without REM! . it also shows my obnoxius over REM on nights I dont take the xywav. also does pulse and bp and blood oxygen.
Only setback- when i wake up to take second dose- sometimes it only reports second half of night. Anyhow- for a long time I wondered if there was a device without the algorithm. Their cheapest rings, one is this one- and the other is a NFC ring- so dont get that one.
my cognition is still pooched, I now realize I read the question wrong, this is information I'm Grateful to Share with Other Narcoleptics! ah well....
That's wonderful! I wish many more places were like that.
I feel like they know exactly what we're treating narcolepsy and because it's you know a hypocrite and supplement or so forth that they're wearing Us in different directions just so we can't get a hold of it or they make it legal or whatever and it's really a shame because we're doing this out waiting and getting our hopes up for a bunch of nothing and they won't even get a stimulants to make a productive or motivated and so we just sleep all the time and that's about it
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