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Has Anyone Tried The New Drug "Orexin" ?
I was diagnosed with "Narcolepsy 1" 43 years ago. I have had several different drugs prescribed over that time. So far all were designed to treat symptoms
because they didn't know the actual cause of Narcolepsy. In the late 90's it was discovered that a deficiency of the hormone "Orexin" (also called "hypocretin) was the root cause. So, since it takes 5-20 years to develop a drug, Orexin has just recently come out on the market.
I am eager to know how the "real thing" would work !
I hope it works my wife just found out that the loss of hypocretin causes narcolepsy
My doctor was going to put me on that medicine. My insurance wouldn’t cover it. I could not afford the price to get it.
Try Sunosi 150 mg per day is what I am taking, I seen a specialist in NYC, day 2 and so far its very good, I would say life changing right now. I hope it doesn't wear off etc..
Looking it up now, not seeing it on line. There are other meds but I don't think orexin is a drug name
Yes heard about also but I'm sorry I don't know how it works. Meeting with the sleep doctor in NYC if I get my prior authorization approved. I will try to get a script for it. Hopefully it will be covered
How Do I Get Drs To Take Me Seriously?
Has Anyone Else Done The Orexin Testing/ Lumbar Puncture? I Got It Done Two Days Ago, It Was Very Strange.
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