Questions & Answers

I was diagnosed in January. I'm having a hard time understanding how this happened. My anxiety tells me that it's not narcolepsy at all and something far worse. My doctor did the extensive and expensive sleep test on me in Dec. 2021 but I just still don't understand. Also, I was reading that having narcolepsy can make you wake up all the time during your sleep at night, I don't have that problem AT ALL. Once I'm asleep for the night, I'm OUT. Which is concerning because I have two small… read more

I basically live off energy drinks to keep me awake... but honestly I feel like it’s more of a placebo effect than the caffeine doing the job. Now I have kidney stones! So, obviously, energy drinks are BAD. I don’t know what else to do! I’m already on modafinil, but it doesn’t seem to be very effective.

I do not take meds. To pursue the doctor route I would have to give up my license and be told I'm wrong until proven right. So I do caffiene. A lot of caffiene. I know there are others in my boat but in many casses people have said they take supplements. The caffeine is killing me. I consume on a good day 1200mg and on a bad day 3000mg of caffeine. Are there supplements I can take to take it's place or at least cut it back?

Maria & I have been nerding out about the beautiful rocks and crystals we've found (aka: Rockhounding). I hike & rockhound the beach 3-4 times a week. It motivates me to get some exercise and wakes me up in the afternoon when my symptoms are at their highest. Besides Rockhounding, I metal detect and create Bonsai Tree sculptures out of wire and the rocks I find. What's your hobby?

Has anyone ever in the past been told by a doctor they think you have narcolepsy and put you on meds for narcolepsy. This happened to me years ago. Just wondering if anyone has ever been diagnosed with narcolepsy with a physicitrist when you told them all of your chronic health issues . Mine ask alot of questions about all my disorders and concluded that I did have narcolepsy in his judgment because as a child the mental issues I had up until adulthood was linked to narcolepsy. Physicitrist if… read more

I have read many stories online of people doing well on Nuvigil for awhile, but then as time goes on having to add a "booster" medication halfway through the day. I want to know if I should expect this, or not. Has anyone been on Nuvigil for a long time with no decrease in effectiveness? Some sources also suggest taking a couple days off the medicine to curb resistance. Has anyone had experience with that?