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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced Really Negative Reactions To Stimulates After Being On Wakix That Lasts Even After You Stop Taking It?

A MyNarcolepsyTeam Member asked a question πŸ’­
Montclair, CA

I don't know what is going on with me, after trying wakix for the 3rd or 4th time with different combinations, only to have negative side effects 2+ months after starting I've given up trying to make it work.

This issue is after each try those negative side effects last far longer then I think they should, what happens is any type of stimulant (Adderall, nuvigil, focalin even caffeine) causes negative side effects to my body I feel like I have sinus pressure and my neck and abdomen are… read more

December 13, 2022
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A MyNarcolepsyTeam Member

I am starting my 6th week of using Wakix. I have had no side effects and after 4 weeks I found that I am sleeping better and am more alert and awake during the day. My dreams are not as vivid and tiresome as they were before when I wake up.
I still need my naps . My cataplexy episodes are much less. Over all I am happy to use this drug. I hope NORD continues to pay for it since it is around 3,000.00 per month for the RX. that is my copay amount. I filled out an application with NORD,
National Organization of Rare Diseases, and the next day I was approved. They told me that each year I would have to fill out a new application.

January 18
A MyNarcolepsyTeam Member

Have you tried bronkaid? It's over the counter at Walgreens. You gotta show an ID and sign for it. It's the best thing I found.

December 25, 2022

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