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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do Beverages With Caffeine Affect Your Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
San Francisco, CA
February 22
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A MyNarcolepsyTeam Member

My son has been taking caffeine pills (200 mg) and it seems to help with his alertiviness. It seems that people with Narcolepsy respond differently to different medications and to caffeine, revealing the uniqueness of each person's brain. It seems that Science would have to provide individualized formulas to individuals in order to address their specific needs. Maybe one day that will happen. In the meantime, let's treasure each second you or your loved ones are awake.♥️

March 20
A MyNarcolepsyTeam Member

I drink a lot of caffeine. I’m not sure I’d survive without it.

March 14
A MyNarcolepsyTeam Member

I have never felt caffeine making much of a difference in my wakefulness, perhaps because I never ingested enough to make a difference. But even if it could make a difference, my doctors tell me not to consume a lot of it, or any of it, because caffeine is a terrible contributor to kidney stones, which I have had problems with many times. So caffeine is right out of there for me.

April 24
A MyNarcolepsyTeam Member

No...you will crash...

April 20
A MyNarcolepsyTeam Member

Do energy drinks help anyone?

April 16

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