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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Actually Have A Routine They Can Follow?

A MyNarcolepsyTeam Member asked a question 💭
Lenexa, KS

I am 35 and didn't know I had N2 til early this year. I was able to accomplish quite a bit before we started to try and diagnose whatever was causing my excessive tiredness. Now I am basically useless after work and feel like I am failing at home life. I don't Wan that for myself or my loved ones. I feel like a shell of myself sometimes and it scares me to think I will never be able to live the way I did before N2 diagnosis and treatment.

July 18
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A MyNarcolepsyTeam Member

Right I always congrats myself for what I can do and be thankful for that

July 26
A MyNarcolepsyTeam Member

I don't have a magical answer unfortunately even after 10+ years dealing with this. At this point the best I can say is to adjust your expectations. Instead of beating yourself up for what you're not doing, congratulate yourself for what you did do. For example, I have piles of laundry that need to be put up but my son wanted to make an oreo cake with me. I don't have energy to do everything (obviously) so I chose to make the cake with him and load the dishwasher. It's not much, but I know I made the right choice to be with my son. So I pat myself on the back and say the clothes may not be folded/away but they are clean and that's damn good enough for right now! I guess what I'm getting at is focus on the important things and don't sweat the small stuff. I hope that helps a little. I know it sucks to have this disease.

July 19

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