Other Conditions With Narcolepsy
I have two rare conditions narcolepsy with cataplexy, of course, and about a year ago I found out I had an Eagle Syndrome. I had surgery for that about six months ago, so yeah Iand about a year ago I found out I had an Eagle Syndrome. I had surgery for that about six months ago, so yeah, I would like to know conditions that anyone has with narcolepsy I still can’t believe that I have two rare conditions. How does this even happen?
I have narcolepsy as well as mosaic Turner's syndrome. Turner's alone isn't common so being mosaic is very rare. I also have Sjogrens disease, epilepsy, extreme Raynaud's, Fibro, hypothyroidism, degenerative disc disease/arthritis, blood clotting disorders, and apnea...which are pretty common, just maybe not all together. I'm only 42. Who knows why some of us are lucky enough to such rareness 🤬ðŸ˜
It’s just crazy to me to be this rare lol 2 rare conditions like I always say to my siblings there is 4 of us I’m the one who gets 2 rare conditions that are kinda hard to explain and understand
my siblings didn’t get any of this..
I just joke I would never want to see my siblings have to deal with something like me it would be so sad for me.. so in a way I think of it is this it happened to me for a reason and I can probably handle it better than most my siblings. I’m thankful it was me about them and I’m truthful about that. I talked to my brothers every day and we’ve been a very close family in my whole life. It makes me sad to see them. Be sad about me when I go into cataplexy..
I've got POTS as well as type 2 narcolepsy. And ADHD, but that's not rare lol
Keep ya head up
With Narcolepsy Being Autoimmune, I'm Curious What Other Issues/conditions People Have Going On..
I Am 50 Years Old I Have Narcolepsy + Cataplexy I Can No Longer Do Much Of Anything Anymore Sitting I'm Asleep Has Anyone Got SSi For This
Can Someone Please Help Me Understand Why Narcolepsy Takes So Long To Diagnose? What's Wrong With Our Society?