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Which Narcolepsy Symptom Surprised You The Most?
Welcome!
Glad you are here. Your story sounds a like lot my story of narcolepsy.
What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
Sheri5 if Tom is like me, he takes xyrem or xywave and you have to wake up in the middle of the night to take a second dose. It’s so worth it, tho. I finally can sleep deep.
Does Anyone Here With Diagnosed Narcolepsy Also Have Fibromyalgia? What About Adult ADHD?
I have fibromyalgia and ADD
Are You Frustrated With Finding Effective Treatments For Narcolepsy?
Am sorry for you
How Does The Cold Affect Your Narcolepsy?
Cold and dark I will never get up. I'm from the tropics. So the heat does not make me sleepy.
Brain Fog
There are many frustrations with Narcolepsy, but not being able to THINK is the most important complication of this condition for me from a quality of life standpoint. Can anyone relate to this and share their experiences (describe your "brain fog" sensation, what makes it better/worse, conversations/responses from doctors) and what medications/doses work best for you (prescribed or the desired dose)? Any lifestyle changes?
Yes Brain Fog! Alot of brain fog! What makes it worse is people around me don't have a clue and all I can say is "I'm sorry, I'm out of it". Or just "I'm out" or "I've got nothing". It seems to be… read more
Does Anyone Have To Stop At A Parking Lot To Nap For About 20 Min If They Have A Long Drive Even After Taking Modafinil 200mg?
Has Anyone Turned To Illigal Drugs To Try To Stay Awake
Does Anyone Else Experience "absent Sleep Attack" , Where You Don't Fall Asleep In The Typical Way But Get Brain Fog Moments?
Where you dont fall asleep but have no ability to focus, hear, or comprehend. It only lasts minutes but it takes a min or two to shake it off
Yes
What Narcolepsy Symptom Do You Have That You Didn't Expect?
You are def not alone. I gained a lot of weight too,150 lbs. I've been going to the gym consistently for like 10 months now. I have lost 45 lbs. It is tough to lose weight specially as we get older. I… read more
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