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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Tried The Sodium Oxybate For Narcolepsy?

A MyNarcolepsyTeam Member asked a question 💭
Boston, MA

I struggle heavily with sleeping anxiety at night and my doctor is trying to get me it. Wondering if anyone can speak to their experience so I can gage an idea! Thanks!

March 6
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A MyNarcolepsyTeam Member

I've been on lumryz about a month. Totally knocks me out and I get refreshing sleep. It's extended release oxybate so you only take one dose at night

Unfortunately my EDS and sleep attacks are too severe for me to be able to go back to work yet. Going to add Wakix next per sleep dr.

June 26
A MyNarcolepsyTeam Member

I'm on xywav 2 it used to work very well for me it's not working so well for me anymore even after my second dose

June 25
A MyNarcolepsyTeam Member

I am currently taking xywav, it’s amazing. I sleep through the night except for having to take the second dose. I wake up feeling good. I don’t have any daytime sleep attacks and my cataplexy has all but disappeared. I would highly suggest talking to your doctor about trying it out. If you have any questions let me know

June 25

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