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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Exercise When Your Meds Aren't Working And You Can Barely Get Out Of Bed- LITERALLY?

A MyNarcolepsyTeam Member asked a question 💭
Dexter, IA
July 15
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A MyNarcolepsyTeam Member

I totally understand what you are all talking about. It easy to stay in bed or on the couch because you don't feel like doing anything. Growing up when Narcolepsy was not something people knew much about. I thought people just thought I was lazy. When my brothers and sisters wanted to find me I was usually asleep in a corner somewhere. I hate sleeping. School was tough no one understood I went to sleep a lot.
My family did not understand. Life was rough. In PE class playing softball was really bad. If I hit the ball I'd be so shocked it took every thing in me to keep myself from falling in a pile. I'd have Catiplexies back than I didn't understand what was happening. Life gets better stay positve. Ask your doctor questions no question is a dumb question. Don't give up life gets better just more of a challenge for some. They have so much more knowledge about Narcolepsy today . I have had Narcolepsy with Catiplexies since 1969.
Pay attention to your body you know it best.

August 3
A MyNarcolepsyTeam Member

Same here my people family ain't supportive at all everybody think I'm just sleeping to be sleeping

August 1
A MyNarcolepsyTeam Member

LORD HELP US !!!
I UNDERSTAND you completely..
And I have not gotten that one figured out yet …
I FEEL the same way ..

July 26
A MyNarcolepsyTeam Member

You are so very right.

July 25
A MyNarcolepsyTeam Member

Great advice Rita2

August 4

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