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**Help The Murphy Family: Support For Food And School Clothes**

A MyNarcolepsyTeam Member asked a question 💭
Pawnee, OK

Hello everyone,

My name is Justine Murphy, and I'm reaching out for support for my family during these challenging times. I have narcolepsy with cataplexy, which has left me disabled and unable to work. This means my husband is the only one able to work, and it's been tough to make ends meet. We have three wonderful kids who need food and school clothes, and we're struggling financially

My kids mean the world to me. They are bright, energetic, and full of potential. As a mom, I dream of being… read more

July 22
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A MyNarcolepsyTeam Member

Thank you Karley that was an amazing answer.

August 7
A MyNarcolepsyTeam Member

Would you recommend people not have kids? Im a young man in my 20’s and I'm married I don’t have any yet. Id like some but i worry so much about my narcolepsy and how it would limit my ability to take care of them. Especially financially or just securing their safety. I don't want to put all the responsibility on my wife because my narcolepsy makes my reliability inconsistent. Any response or tips is helpful.

August 4
A MyNarcolepsyTeam Member

I've been fighting for disability for almost 4 yrs. I just had my last appeal approved to be sent back to the judge that denied me. It's a very hard battle, especially if you're younger (I'm 42) because they fight back against you as much as they can. It's been a financial strain on us but I can't work so there's not much else I can do.
Reach out to to places that can help families like yours. They are out there for a reason and can have a big difference in what your kids need. Best wishes, there's many of us out there 💔

August 20
A MyNarcolepsyTeam Member

Justine please apply for disability and be assessed for depression and anxiety (recommended from reading your post and knowing the struggles we face daily).

August 18 (edited)
A MyNarcolepsyTeam Member

I can honestly say that having my son is the best thing that has happened in my life, I can’t imagine life without him. He has bought me so much peace and happiness. Being his mum has helped me love and accept myself again after struggling with that after losing so much of my identity getting narcolepsy.
I worry sometimes about how my narcolepsy effect’s and limits our lives but it’s silly to because he is such a happy child. Every family is different and each child’s experiences in life are different. My son may not get to go as many places as some kids or be involved in as many activities but he has a very rich home life full of laughter and love. Maybe he might even grow up better for it!
Money is definitely a concern though, it is a lot tougher than I’d like financially but honestly, I do not regret having my son or raising him on my own.
I think if you want children you should not let having narcolepsy stop you from becoming a parent. X

August 6

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